Your opinion on this list of natural treatment

[Grumpy77]

what do you agree or disagree (or don't know) with the list for slowing the progress of Parkinson's Disease here life-saving-naturalcures-an...

[Farooqji]

The listed treatments have some degree of benefits but difficult to follow all of them

[JANVAN]

Good article, good overview.............but you have to get in detail, and to implement it practical, you have to search an experienced naturopath (I think that are the doctors who at most have a holistic view in Amerika. In Europe that are most MD's, who aren't satisfied any longer with conventional medizin ,,,,, also "Heilpraktiker" and sometimes Osteopaths).

Here a link about the Cannabis.....

parkinsonsnewstoday.com/201...

[faridaro]

Good recommendations, but you need to be careful with iodine, especially if having thyroid disorder.

[Hidden]

I can attest to the effectiveness of borax! It put my psoriatic arthritis into remission with regular use and is a broad spectrum antifungal. I know several people who have benefited from borax/boron/boric acid for their arthritis. Arthritis can make you less mobile and unable to exercise which would not be good for PWPs who seem to get very good benefit from regular exercise.

Overall, I like this list, but as with most things, some may be more effective for each individual and some may be more tolerable for some people or may be more effective for some people. As an example, a person with very low vitamin D status will likely get apparent benefit from bringing their 25 (OH) d serum level well into the reference range whereas someone already in that range may not.

Art

[Grumpy77 in reply to Hidden]

Thanks for your reply

What do you think of the author's order of importance? 1. medical marijuana 2. coconut oil 3. turmeric etc?

Even if you're not a medical practitioner, I will still value your opinion , thanks

[alexask in reply to Grumpy77]

I think some of these work together. So turmeric is absorbed better with coconut oil (and pepper). I would actually put exercise at the top.

[Hidden in reply to Grumpy77]

I didn't really consider the list in order of importance. Although I believe medical marijuana is useful for some PWPs, it is hard to even rate it since many people have no access to it or it is illegal where they live. MM is also hard to get an exact dose every use and experience tells me that when you find a strain or hybrid blend that works well for you, it may not be at the dispensary the next time you go to get it. That market is still evolving and is in a state of flux.

I'm probably too biased to rate the list, because thiamine / B-1 would be my number one supplement for PD and it isn't even on the list!

The other issue is that ten supplements is going to be more than "most people" will take regularly because it gets harder to keep track and is somewhat difficult to take considering it is going to be a life long commitment. I think a list of five is much more doable and practical for the average person.

Vitamin D would definitely be in my top 5 as would magnesium in the topical and oral forms. The synergism between D and magnesium is very good! The type of magnesium would be important. I would have EGCG in my top five also. I think a B-50, B-100 or B-200 or a B - hybrid would be quite useful also, but the thiamine could possibly be considered part of the B- complex in which case there would be room for one more supplement and I would probably choose pine bark extract (PBE) for its potent antioxidant and antiinflammatory qualities as well as its likely synergism with the above plus its excellent safety profile.

I believe that this combination of five is doable and likely to be highly effective for PWPs as well as many other health issues!

Although I believe Curcumin is quite useful for PWPs, I am allergic to it, so it would definitely not be in my top anything.

Fish oil is a fairly potent antiinflammatory, but you would probably need to take up to 4 grams a day to see benefit and then there are the issues of PCB's, mercury and rancidity with some products. At 4 grams per day, that is likely to be 4 big softgels to swallow which is going to be a problem for some people.

I'm not sure vitamin E would make my top 10. I would put NAC or PBE well ahead of it. The blood thinning effect may not be good for some people.

Exercise would be in my top five also, but I don't consider it a supplement so it can stay anyway even though that puts it over 5! The same with healthy food choices.

Coconut oil and or MCT would be in my top 20.

Borax, I already take, so it doesn't count, but it would definitely be in my top five if I have arthritis and everything else has to move down to make room for it, but no arthritis and maybe borax only makes the top 15 ! Plus some people are not able to tolerate borax.

I look at the chlorella as being metal specific, so, no metal problems, maybe no chlorella. Perhaps look at this one as just a temporary supplement to be discontinued once metal overload is dealt with.

Similarly to thiamine, in that it is not on this list, melatonin could easilly be in my top five, possibly moving PBE down the list. The advantage of PBE is it is probably tolerable for more people, while melatonin has better studies to show that it is likely quite useful for PWPs!

Btw, I think this article is misnamed as none of this is a "cure", but I do believe that many people would get incredibly great benefit from such a regimen!

Art

[Grumpy77 in reply to Hidden]

Very interesting and useful

Thanks for the thorough details.

I agree that thiamine should be included and is number 1. And also with the rest of your statements

If one is very organised I think one can add your additions to the list

[Hidden in reply to Grumpy77]

Grumpy77,

You are so right.....' being organized '.......that is probably better situated in the number one spot as it will help to insure regular and proper dosing!!! I've learned over time that people will tell you that they are taking a supplement regularly at the correct dose, but when you inquire further, sometimes what they really mean is that they take that supplement at the right times and the right dose, but "only sometimes or when they remember"!

If we are organized in the use of our meds and supplements, I would think that will equate to better days ahead in terms of our overall health!

Art

[Astra7]

Great list but no mention of NAC or mannitol. Both highly effective for me so far I believe.

The coconut oil is a challenge though. How to get it down without gagging! Mine is just sitting in the fridge.

[Hidden in reply to Astra7]

I included NAC on my list, but I don't yet know enough about mannitol as it works for PD yet to have a good idea of where it would place on a top ten list. Can you tell me about your experience with it or point me to a post where you discuss it and its benefits for your PD symptoms? Thank you!

Art

[Astra7 in reply to Hidden]

I started it about 5 months ago and after around 4 weeks my sense of smell improved and my head felt much clearer and I felt less distant and more normal. At the same time my husband mentioned that I'd seemed much better lately and asked if I was doing anything different.

It's funny how when things improve that you forget they were bad. I realised the other day that hanging and folding the laundry was not such a huge chore, and getting the sliced cheese out of the packet no longer filled me with dread and frustration! I also no longer tip up on my toes when cooking and my toe curl is much less severe. My arms swing more when I walk and I dont find my left hand in an odd position in front of my body. I am still stiff at night and sore in the morning and get up like an old lady from my office chair, and I still find stress debilitating.

Even my neuro was surprised and said if he wasn't an expert he wouldnt be able to tell I had PD. I am 54 diagnosed 2 years ago but with virtually no tremor.

My tennis is improving too! Long may it last!

[Hidden in reply to Astra7]

I'm sure it is from years of experience that Dr. Costantini insists on those two videos before you start on his protocol. One of my friends with PD who had a quivering lower lip, drooled and had strong hand tremors two years ago that are now gone, told me the other day that he did not remember having those issues! I was shocked, but quickly set him straight as did several of his family and friends!

I believe the correct supplements can make a world of difference for PWPs! They are by no means as fast as the drugs you would use with them, but they have the potential to do more in terms of stopping or slowing disease progression, compared to those drugs, which don't.

Art

[faridaro in reply to Hidden]

Thanks for sharing your knowledge with this group - love your posts! In the above one you've mentioned the following: "Dr. Costantini insists on those two videos before you start on his protocol". Do you have the links? I must have missed them.

[Hidden in reply to faridaro]

No links, just what he tells every one of his patients and those who correspond with him via email. He only asks for a 30 to 60 second video. One of you talking and one of you walking. Very helpful for all involved to keep clear track of progress on his thiamine protocol. It is just too easy to forget how bad you were!

Art

[faridaro]

I mix a tablespoon of coconut oil into a bowl of hot cooked millet which I have for breakfast in the morning, millet absorbs it and I can't really taste the oil.