Probable idiopathic Parkinson’s disease Recent right hemispheric stroke

[allofatremor]

Hello friends,

My husband Dx 5 years ago went to see his Neurologist for his check up last week.

We were told all was fine, and that he is doing very well considering he has this awful disease.

When I collected his prescription a few days ago I noticed that his Stalevo was double his normal strength, and informed the pharmacy who said this is on the prescrition sent by his GP.

We have recently moved, so I was assuming that this was an error, so just to confirm the Stalevo was the correct strength I contacted the Neuro's secretary to ask if this was the correct dose as the neuro said there was no change in his meds this time round.

The secretary sentme a copy of the letter that his Neuro had just sent to his new GP so I could look at the meds prescribed. The meds were as I thought, the new GP has prescribed the wrong strength.

The worry I now have is that I read the whole of this letter sent to our new GP from his Neuro, and it stated at the top as diagnosis

Probable idiopathic Parkinson’s disease

Recent right hemispheric stroke

There was no mention last week when we seen his neuro of any stroke???? I have sent his secretary a message to ask what this is as no one has mentioned this to us last week.

Does anyone know exactly what this means?

regards Gxxxxxxxx

[Tiger101]

Yikes! This sounds like they got your husbands records mixed up with someone else. Perhaps the doc was looking at someone elses records during the visit? Good looking out!

[M_rosew]

It could be a mixup, or it could be exactly what it says. Not all strokes are significant. The NHS app 'Patient.co.uk' gives a good explanation.

Always a good idea to be on good terms with the medical secretaries, for both your GP and the Consultants. They have access to the notes and are often a good first call for queries.

[allofatremor in reply to M_rosew]

M_rosew, I think the prescription is a mix up and they have just given the wrong strength as I have checked it against his Neuros letter.

Its the diagnosis that shocked me not so much the PD, but the stroke suggests to me that this was evident last week when he seen him, surely he would of mentioned this? or maybe not? its just thrown me, I've not told my husband it would just worry him so much.

[M_rosew in reply to allofatremor]

I think I would ring the Neurologist's secretary and say you were surprised to see reference to stroke in the letter because it wasn't mentioned during the consultation. You need to know one way or the other for what to do next.

If you decide instead to go straight to the (new) GP, take the letter with you.

[allofatremor in reply to M_rosew]

The secretary has emailed a copy of the letter to the Neuro with my concerns, so hopefully will find out soon xxx