It seems to me that are exciting things going with this disease but that PD is trailing. It’s now beginning to be accepted by many that there are distinct protocols that are encouraging recovery in some. One cornerstone to this is their insights into the fact that different Alzheimer’s patients need different protocols depending on their genetic background. For instance, one of these subgroups doesn’t respond well to coconut oil and in fact the latter is claimed to be somewhat inflammatory if the sufferer has a certain gene. Do scientists have such insights for PD yet I.e that your range of symptoms and best treatment would be tailored to genetic background? Maybe this would help us understand why some of us respond to coconut oil and some don’t etc
Way to go Alzheimer’s: It seems to me that... - Cure Parkinson's
Way to go Alzheimer’s
And, perhaps, why some of us respond to any one of many other things, while others don't.
But enlightened clinicians like Bredesen are now genetically showing that one of either 3 genes is present to cause ones Alzheimer’s and treatment is tailored towards each type. I’m just saying I so wish that we had this with PD.
I preordered book "Dirty Genes" by Ben Lynch, which will be coming out on Amazon on Jan.30 and hope to gain some insights from it. He also has a video on youtube with the statement:
"While genetics play a role, it is more the impact of lifestyle, diet and the environment. Certain genetic polymorphisms can amplify the influence of a harmful environment, lifestyle and diet."
youtube.com/watch?v=yfmbjwe...
I've done genetic testing which revealed certain mutations (like impaired clearance of pesticides among others) may have contributed to PD. Can't wait to get the hold of this book!
Nor can I! Thanks for a great lead. At the same time I wonder what we’d all do with this information if we’re unsupportre by the conventional medical community? I tried enquiringly about fecal transplants recently as I know they’re available but was told that the ‘practice hasn’t been demonstrated for PD’’. They could have added YET and in 10 years time maybe they’ll get around to thinking outside the box 😕
I have discovered that for any new or unconventional/alternative treatment you'd need to find a good integrative or functional medicine physician. However, here in the US these kind of practitioners don't accept medical insurance and you have to pay out of pocket significant amounts $$$ .
I read an interesting article about a diy transplant technique! First you need to find a friend....
I have been given Mutaflor by the integrative GP and recently discovered it was made in the 40s using bacteria extracted from someone's faeces. So this idea has been around for quite a while. And I'm eating the descendants of someone's poo!!
Where did you get genetic testing done? I started with 23&me (negative for LRRK2 and GBA) and am doing Invitae PD and dystonia panels soon. What other panels/mutations can be looked at? Thanks!
I did 23&me as well and then found a local integrative MD who went through some training with NutriGenetic Research Institute. Based on their software the MD generated 37 page report of different groups of genetic variants and how they impact various metabolic pathways and detoxification capacity - with supplementation recommendation - most recommended supplements are manufactured by the company which some see as a red flag, but 2 of those supplements greatly helped my son who has Down Syndrome and Lyme - both conditions create excess ammonia. I didn't realize how much they helped until he run out of them and things started getting worse... The report doesn't specifically address diseases except the Lyme study SNPs.
Here is the link:
nutrigeneticresearch.org/?p...
Which ones helped? Also what is your sons blood type Rhesus factor?
The supplements which helped are called "Ammonia Scavenger" which is a proprietary blend of of vit. B6 (P5P), arabingalactan, L- Citruline, L-Ornithine, Yucca, Alpha-Ketoglutarate, L-Lysine HCl and another one is "CBS/BHMT Assist" which is a proprietary blend of N-Acetyl Carnitine, Yucca, Lecithin, TMG. My son's blood type is A+.
What foods not to eat for fear of worsening symptoms?
Other experiences of coconut oil.
COCONUT OIL Anyone having good results?
tasty way to take coconut oil
