Shouting out during sleep

[Shakinginnc]

Hi everyone my name is Shelley G. I was diagnosed with PD just last month , but truly think I have had it longer and was just not discovered till now. I have a question about sleeping, I have been having very vivid dreams and shout out and kick a lot lately and have never done it before, ( I only take Amantadine 100MG >3 daily right now) Has anyone one else experiencing this?

[maz888]

Hi Shakinginnc. My husband was dx'd with PD last month too. About 4 months prior, he started to have wild dreams, shouting and flailing. His neurologist says it's one of the PD symptoms. It's calmed down now, but still occurs periodically. Apparently, the lack of dopamine affects REM sleep which causes this situation.

[paulalex1313]

Hi Shelley, My wife was diagnosed 6 years ago. She also has wild dreams, with shouting out, mostly incomprehensible words, kicking legs and flailing arms. I calm her down with soft talk and gentle restraint of her arms, both for her protection and mine. These dreams are not frequent and she cannot remember them by morning, but they are just one of the joys of PD. The best treatment, for her, is for me to crack the jokes to keep her laughing. She may be the one in our partnership who was diagnosed, but we both live with it. A sense of humour with PD does help.

[Nightingale-5]

Hi Shelley, for several years I used to shout, kick, punch in my dreams. I read an article about this in a paper and did something I've never done before, I took it to my GP and said this could be me. Eventually I was diagnosed with REM Sleep Behaviour Disorder. It's not a given but sufferers of this can go on to develop PD. I take medication now and am much calmer but it was so bad that I don't share a bed with my husband as there was a real chance of me hurting him. Please remember this is my experience, I am not trying to diagnose or worry you, but to reassure you that your symptoms are not uncommon and help is available. Very best wishes to you.

[Shakinginnc]

Thank you for the reply everyone it helps to get feedback from folks that are going through the same things .

[Burlingtongal]

Shakinginnc, yes this was one of my first PD symptoms. It began 3 years before I was diagnosed. It’s called REM Behavior Disorder. I take Clonezapam and melatonin at bedtime. It has improved greatly, but hasn’t completely stopped. I have to cover all sharp edges with blankets and have a railing on my side of the bed to keep me from falling out of bed. I have to say that I shout out things I would never say if I were awake.

[Tgs0823 in reply to Burlingtongal]

Yes my husbands swearing during REM sleep can be full os colourful language...words he would never dream of saying while awake. Its hard for me too not take this to heart as my name is tagged onto his swearing.

[Shakinginnc]

Thank you for you reply, I haven’t been real active just kicking my legs and flailing my arms along with the shouting. My husband said he couldn’t wake me up for awhile last time, I would open my eyes but keep shouting and thrashing around.I am glad that you found some relief. I am going to talk to my neurologist about this at my next appointment.

[NanCyclist]

REM sleep behavior disorder is relatively common with PD and can be controlled with Clonazapam most of the time. In times of great stress I add a 1/2 pill to my dose (.75mg up to 1 mg.) just until the big stress is over.

[Tgs0823]

Hi Shelley.

My husband with has this as well. Its called REM sleep disorder For people without PD there is a physical disconnect with body during REM Sleep but with Pwp the body acts out the dreams. REM sleep dreams can be very violent in nature. He yells kicks and swings at me in my sleep so.

Before pd diagnosis his dr said he had restless leg syndrome.

The dr gave my husband an .25 mg clonazapam anti seizure med that sometimes helps to calm it down.

[Shakinginnc]

Thank s for all the feedback 🤗 My Neurologist diagnosed me with RLS which I have suffered for years with, but has yet given me anything for as I am on a lot of medications now and she doesn’t want to load me down with to much at once. Tackle the big things first I guess😉

[shirleyb53]

Yes, I was doing the same thing. I'm on levodopa and doctor put me on 2 ropinerole at night and it seems to help. I hade vivid dreams if I fall back to sleep - so annoying and sometimes frightening.

[ion_ion]

Yes, I do. is called REM disorder and have nothing to do with medication. Is a PD symptom. I do not take any medication yet and I have these dreams for about 3 years now.

Is the amantadine helping to reduce the tremor?

[Shakinginnc]

Yes the Amantadine does help if I take it 3 times daily. I thought that the mess weren’t the problem because I had this issue for a couple years, just getting more frequently lately.

[Shakinginnc]

Sorry medicine

[Astra7]

This has started happening to me. My husband says I mumble and moan and sound quite distressed. The other day I hit someone in a dream and woke myself up whacking an object off the bedside table! Lucky I wasn't facing the other way or I would have whacked him!

[Hikoi]

Hi Shelley

As people have told you this is rem sleep disorder and an early PD symptom however amantadine can make it worse . Many people, muself included have to stick to 2tabs day as the third tips me over into hallucinations at night Many people find it is also best to take the amantidine in the morning as it can interfere with sleeping (getting to sleep etc).

This is something you need to discuss with your doctor.

[Shakinginnc in reply to Hikoi]

Thank you I will definitely talk to her about it.

[Cbgs]

I have the same

Every morning my husband will try to remember what I said

It mostly is swearing 🙀

Some times not intelligible but last night VERY intelligible!!

Usually i do wake up & remember what I was dreaming about

I'm up now bc of yelling & kicking and scared the cat as she went flying off the bed

Lol !!!

[windhorsepixy]

My husband had severe REM sleep disorder with up to 4 or more episodes per night in which he would be thrashing, bolting upright, yelling AND having hallucinations (Pre-PD diagnosis & pre-any medication) They got (& have) it under control with 10-12 mg. Melatonin in pm. (2 years later they finally diagnosed the PD) The only other medication he takes is Carbo/Levo 3x D. He has had no side effects from the Melatonin. He still has trouble getting & staying asleep but at least there is no parade of animals in the bedroom that he sees & I don't !

[Hidden in reply to windhorsepixy]

My husband has things flying through the window. Yells when he sees them but he does seem to be protecting me from them. Before his PD diagnosis, I told him I thought he was reading too many comic books (he collects). I also had to remove the touch lamp next to him as he kept hitting the heck out of it. I feared he would cut his hand. He never remembers anything the next day.

[answerseeker]

Many people get positive relief taking Melatonin but the dose needed to be effective can vary. Here's one reference. ncbi.nlm.nih.gov/pubmed/145...

[Shakinginnc]

Answer seeker,

Thanks for the information 😊