Looking to retrain my Brain: I'm new here... - Cure Parkinson's

Cure Parkinson's

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Looking to retrain my Brain

y8bam2 profile image
10 Replies

I'm new here.Seeking plant remedies for PD (eg.Mucuna) as well as activies other than exercise(yuck) for my advancing PD...John pepper's ideas are wonderful but I'm to decrepit and sedentary for his walking. Forget mainstream doctors-except Dr Doidge and his neuroplasticity evidence -brain retraining is fascinating-lots of hard work and focus but it works....

My Experience: I stopped Sinement 2 yrs ago because it wasn't working as well and I am afraid of developing its side effects. Gradually replaced it with Mucuna Pruriens. Now I use the cheapest and best form of it- organic powder. -1 Tablespoon an hour in water or mixed with a homemade thickener to make swallowing easier for me. . (Have swallowing and speaking problems and am currently practicing speaking-which causes many of the same muscles as swallowing )

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y8bam2 profile image
y8bam2
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PNIAuthor60 profile image
PNIAuthor60

I would suggest checking out brainhq.com - it is a site that is based on the work of Dr. Michael Merzenich who is a world authority on brain plasticity. Dr., Merzenich wrote a book called Soft-Wired and I believe he also has a website with that name. I look forward to reading the book. I am sent daily exercises at this point and some I can handle and others confuse me. I do not have Parkinson's - I am in this community because my youngest son, 37, was diagnosed with early onset at the end of April. The support here to me as a parent has been very warm and embracing.

Beckey profile image
Beckey in reply toPNIAuthor60

Bless your heart! Your son is lucky to have such an engaged parent.

PNIAuthor60 profile image
PNIAuthor60 in reply toBeckey

Thank you Beckey for your kind words. My son is supported by an agency that supports those who are developmentally challenged so whatever information I have received from the Michael J. Fox Foundaiton, I share with them and they are grateful for my support as well. I stress that I want us all on the same page to be able to help and encourage him.

laglag profile image
laglag in reply toPNIAuthor60

Have you looked into LSVT BIG & LSVT LOUD?

PNIAuthor60 profile image
PNIAuthor60 in reply tolaglag

I'm sorry I don't understand what these initials mean?

laglag profile image
laglag in reply toPNIAuthor60

LSVT is Lee Silverman Voice Treatment - he came up with a program called LSVT Loud to help increase the voice and then added LSVT BIG to help PwP's (Persons with Parkinson's) to make bigger movements. It's a physical therapy type program that really helps. Look it up on Google to understand the program a little better.

laglag profile image
laglag in reply toPNIAuthor60

I just went to my email & this was on a newsletter that i receive on Parkinson's.

davisphinneyfoundation.org/...

PNIAuthor60 profile image
PNIAuthor60 in reply tolaglag

Thank you for your kindness in sharing the link and taking the time to help me understand what the letters meant. I will check it out,

kaleiann profile image
kaleiann

where do you purchase organic mucuna?

y8bam2 profile image
y8bam2 in reply tokaleiann

There are many sources-more all the time . I shop for it on line-just google Mucuna or mucuna pruriens . I prefer organic powders at home and caps etc when out.

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