Sinamet failure

[Joecola]

Sinamet er makes me feel weak. Went back to 250 immediate release and the shortness of breath came back. Me Neuro is scheduled for the 7th but not sure she will have any answers. Need help!

[GymBag]

Talk to your M.D. immediately. Get a stress test done, could be your heart. Never wait for your Neuro for a medical subject. If at all in doubt ( burning, pain shortness of breath, headache nausea , sweating go to hospital Emergency, NOW .

[Bea6]

Hi jocola I too have terrible side effects from sinemet. Feel weak sick poorly tummy and just wiped off my feet. My neuro won't listen when I say how bad it is for me. As it controls neuro side of pd. I couldn't tolerate madapar either.

Much love

Bea

[parkie13 in reply to Bea6]

What are you taking now did you find something that agrees with you?

[Joecola in reply to parkie13]

Had to go back on the immediate release sinamet which has had a wearing off issue of shortness of breath.

[Bea6 in reply to parkie13]

Hi no I'm still struggling with sinemet x

Bea

[Motherfather]

sorry to hear that but go to your nearest hospital i did, i threw my sinmet in the rubbish bin im not sure were your from but i take madopar 200/50 3 times a day and 1 azilect 1mg,and im coping ,but im going to china soon for some stem cell treatment ,some time in the future ill let you know.keep exercising i do 7 days a week.100 push ups as well.im 70.i even have abs now..remember go to hospital.dont wait.regards john.

[PDConscience in reply to Motherfather]

Ma/Pa, You really should take time to inform yourself of the current state of the technology before you involve yourself in a stem cell scheme that may cost you much more than wasted time, great expense, and considerable risk. Although there are some very promising IP (induced pluripotent) stem cell therapies completed in animals, there are thus far NO CREDIBLE health facilities offering a functional stem cell therapy for humans hoping to relieve any neurodegenerative diseases anywhere in the world. The unregulated, cure-all therapies on offer in obscure corners of the world are usually 'adipose' (fat-derived) stem cells which will not differentiate into the quality and quantity of dopamine-producing cells needed to mitigate the symptoms of Parkinson's. Save money, time, heartbreak, and more - wait for a credible solution.

youtube.com/watch?v=Xnrg3Gk...(Not working as expected?)

[Bridielena in reply to Motherfather]

Wait

Google LCT New Zealand

[Motherfather in reply to Bridielena]

WHY.

[Bridielena in reply to Motherfather]

You will be very surprised

[Motherfather in reply to Bridielena]

how long do i have to wait.im an aussie.

[Bridielena in reply to Motherfather]

Well as I understand it 2018 in NZ but $120,000. Australia to follow but when? I spoke with my private insurer and I would be covered here in Australia. Have Top Hospital cover only but keeping it current

[Motherfather in reply to Bridielena]

no bridie thats not going to happen for a long time as it will take years just for the results.then you have thousands of people wanting to have it done.its many years away.

[Bridielena in reply to Bridielena]

The Trials are completed and all recipients continue to thrive.

I don't recall exact terminology but next year , maybe end of this year the procedure will be available to paying patients in Auckland.

The rest of the world to follow.

I'm patient and want to believe what I have been told on good authority from the CEO of LCT.

I'm sick of taking pills and supplements and this procedure for me is the answer.....that is.....if I don't fall before. Lots of falls now..

You sound as if you have lost Hope and every morning as I struggle just to get through another day I think of LCT and it's possibilities for me and YOU and the rest of the community.

[Motherfather]

hahahaha they might have to dig me up..i have the money and if i die i dont really care.as i dont want to get to that stage.when im a burden to my kids i know theres no cure .but if i have a chance to have a better quality of life well it will be worth it.i do know of one woman here that made a big differents to her life.

[park_bear in reply to Motherfather]

I have to concur with the prior commenter that this is a scam:

google.com/search?q=%22stem...

But if you do decide to go ahead do let us know your experience

[rhenry45]

Take Xadago along with sinemet and exercise every morning (Get a Theracycle for best results) and the shortness of breath will go away. The shortness of breath is from weakness that you get from PD not the sinemet. If you get in better shape and follow what I said above I promise you that feeling will go away. I know because I used to have it and I know how bad it is. I do not have it anymore.

[johntPM]

Joecola,

What is your drug regimen (drug, time, dose) and what symptoms do you have and when do you have them? How old are you? How many years are you from diagnosis? Do you have any other illnesses? When did you last have a regimen that "worked"?

If you draw a graph of this data, your way forward may become clear.

For instance, do you always have shortness of breath or does it start, say 3 hours after your last dose? The former experience would suggest a general medical problem. The latter would suggest that, perhaps, you should increase the size or the frequency of your dosing.

See your doctor.

As rhenry45 says, exercise.

John

[Mlitt0818]

My husband also felt terrible on Sinemet. He quit taking it a while back, and his nausea disappeared and appetite went back to normal. But dr felt like he would benefit by going ahead with trying dopamine again. She prescribed Rytary, an extended release form. He is doing very well on it so far. But it's pricey when you reach the "donut hole" on drug prescription plan. We are researching ways to qualify for help with paying, or coupons from the company, etc.