Grateful (to my forum friends) caregiver - Cure Parkinson's

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Grateful (to my forum friends) caregiver

Josephsimon profile image
5 Replies

Recently, I posted about feeling so overwhelmed as a caregiver. I want to thank all of you who responded. I agree that no one knows unless they have walked in my shoes. Besides PD, LouIs has dementia which is getting worse by the day so I can't talk things out with my best friend anymore!

I went on the internet and I found this. In the sentence, "Bottling...", I found an explanation for my making a mean remark to our firstborn. I sent the article along with a lengthy apology and let her know how grateful we are for everything she does for us. Notice, I said "explanation" not "excuse!"

"Will you still need me,

will you still feed me,

when I'm sixty-four."

The Beatles, "When I'm 64"

Times have certainly changed since Lennon and McCartney penned and sang those words in 1967. Medical and healthcare strides are allowing people to live well into their 70's and 80's. Despite those health advances, the fact remains that caring for a spouse in need, regardless of their age, is very demanding, stressful and could threaten your own health.

The Journal of American Medical Association reports that if you are a spousal caregiver between the ages of 66 and 96, and are experiencing ongoing mental or emotional strain as a result of your caregiving duties, there's a 63% increased risk of dying over those people in the same age group who are not caring for a spouse.

As a caregiving spouse, you may begin to feel very isolated from friends and feel tremendous guilt about your own unmet needs. There can also be a sense of loss, especially if your spouse suffers from dementia or Alzheimer's disease.

So how do you know if caregiving is becoming too risky for you? Examine this list and see how many apply to you:

Missing or delaying your own doctor appointments

Ignoring your own health problems or symptoms

Not eating a healthy diet for lack of time

Overusing tobacco and alcohol when you feel stressed

Giving up exercise habits for lack of time

Losing sleep

Losing connections with friends for lack of time to socialize

Bottling up feelings of anger and frustration and then being surprised by angry, even violent, outbursts directed at your spouse, other family members, co-workers - even strangers

Feeling sad, down, depressed or hopeless

Loss of energy

Lacking interest in things that used to give you (and your spouse) pleasure

Feeling resentful toward your spouse

Blaming your spouse for the situation

Feeling that people ask more of you than they should

Feeling like caregiving has affected family relationships in a negative way

Feeling annoyed by other family members who don't help out or who criticize your care

All caregivers who experience elevated levels of stress are at an increased risk for physical and emotional issues.

Even if you are only experiencing two or three of these items, it is important to get help and support.

The truth is your spouse/partner will be in better hands if you are healthy.

Thank you so much for listening and sharing your thoughts about caregiving. Happy to have you in Zachary, La. (north of BR).

Joseph Simon (Kathy Mier. Josephsimon is our dog!)

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Josephsimon
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5 Replies
GymBag profile image
GymBag

youtube.com/watch?v=YkzgAJb...

GymBag profile image
GymBag

This post kinda got missed I think. The last post by Jose above , about care givers is very important and should be elevated somehow to the attention of more people.

GymBag profile image
GymBag in reply toGymBag

So I made it more available to people who read "RECENTLY ACTIVE"

GymBag profile image
GymBag

I think I did

Caregivers need be aware of this and realize that if their health is effected everyone losses.

wifeofparky profile image
wifeofparky

I was my husband's caregiver and now I facilitate a Caregiver's Support Group. It IS a tough job and as you said you do not understand till you walk in our shoes.

I remind my caregivers of the tips above nearly every meeting. Thank you for sharing and I hope you get some respite for yourself.

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