My first post!

[mis37]

Hi everyone! I'm 38, one year since the diagnosis. My name is Leticia.

I'm taking Neupro and Plurimen (rotigotine and selegiline), which natural supplement helps?

Thank you in advance for your help!

[Hidden]

high doses of thiamin

[Catlou in reply to Hidden]

Do you remember seeing something about taking it with b-12 & niacin

[Hidden in reply to Catlou]

yes

[Hidden in reply to Catlou]

amazon.com/Ecological-Formu...

Recommended if your nervous system is on the fritz.

BySteve reviews stuffon January 3, 2015

You may need to add supplemental magnesium, preferably a bioavailable form (not oxide), to make this work / avoid side effects (palpitations / anxiety). Magnesium is a cofactor for the functioning of thiamine, among its many other roles in the body. Adding a bit of the other B vitamins, particularly riboflavin, may be important also, as their functioning is generally interdependent.

[Xenos]

Hi Leticia,

Welcome to the group

I personally take :

- Mannitol (the CliniCrowd experiment) ;

- N Acetyl cysteine.

I keep an eye on Curcumin, Ceylon cinnamon, Omega 3 fish oil, probiotics.

If Mannitol does not work, I will try a nicotine patch protocol some people are extremely happy with, even though it's pretty controversial among neurologists.

Hope this helps.

[faridaro in reply to Xenos]

Could you please specify how much Mannitol and NAC do you take? And also, have you noticed improvement in your symptoms?

[Boyce3600 in reply to Xenos]

How are things going with the Mannitol? How long have you been taking it and at what dosage are you currently? Have you noticed any negative effects at all other than the gas or diarrhea that I have read about?

[Xenos in reply to Boyce3600]

Hi faridaro, hi Boyce,

For the Mannitol, I would prefer you to go to the CliniCrowd site. You will be asked to open an account (it is all completely free of charge), respond to a questionnaire (10 mins), and then sent to a page giving you all the details about the dose that is suitable for you.

You thereafter will be asked to connect and respond to a similar questionnaire every month or so. That's it. They do not even sell Mannitol, which by the way is very cheap.

I am just over 3 month of taking the supplement (day 96). Apart from gas and mild bloating - no diarrhea - I feel a little better, less cramps, less pain, and I have reduced my L-Dopa dosage.

For the NAC, I take 3 x 600 mg a day. I recently read that it would be better to take them apart from meals. The rationale behind the dose is here :

sciencedaily.com/releases/2...

I take 3 capsules instead of 2 in the experiment since I do not have the IVs...

[JohnPepper]

There is something other than taking medication which you can do. Here is my story:

My first symptom started in 1963, when I found that I could not throw a ball properly. I was finally diagnosed with Pd in 1992 when my symptoms, most of which were being treated with medication, had slowly got worse and worse. Only when I started to shuffle was a neurologist able to diagnose the Pd.

Because of severe back problems, I had been going to the gym every day, six days of the week, since 1968 and until diagnosis. Then I increased the time to 90 minutes a day. In 1994 my symptoms had accelerated and I therefore decided to stop going to the gym.

Since 1994 I have been doing Fast Walking plus taking an MAO-b inhibitor, managing stress levels, keeping a positive attitude and doing regular mental stimulation. By 1998 most of my visible symptoms had disappeared. By 2002 I was able to come off all my Pd medication, and have continued to be medication-free ever since. I am 82 years old now in 2016 and live a 'normal' life, full of purpose!

Many Pd patients think that they will not be able to do Fast Walking! I have found that many other patients, who had walking difficulties, even those who were wheelchair bound, have been able to walk normally, once I have shown them how to use their conscious brain to control the movement. I go all over the world successfully showing hundreds of Pd patients how to walk properly, with only three exceptions. One could not stand on his own legs and the other two were unable to understand how to use their conscious brain. Above all else, walking costs nothing and everybody's health improves, when they do fast walking, and if you put everything into it, then that may include you!

Many neurologists throughout the world, who have never examined me, have told their patients that I do not have Pd and should therefore not listen to anything I tell them. I have been examined by four different neurologists, the last of which was in 2015, and they all told me that I have Pd. The problem is that I look so well and because there is no cure for Pd, I obviously don’t have Pd. It is not my fault that this is happening to me, but I am determined to share my good fortune with every other Pd patient, at no cost to themselves

Obviously there is a lot at stake here, especially for the pharmaceutical industry, who have spent billions looking for a cure, and neurologists, because I have not needed to consult a neurologist since 2002, other than the one I asked to examine me in 2015.

View my website - reverseparkinsons.net and contact me from there.

Good Luck!

[Hikoi]

Regarding exercise Cycling is also good. Here is a link

healthunlocked.com/parkinso...

but your question was supplements, there are a few threads on this, you can use the search box to find them.

[mis37]

Thank you all for your comments.

It's not easy to decide what supplement combination. So far I have chosen

NAC, Omega 3, Vitamin C, Egcg, Magnesium and a mixture that contains 5htp plus other stuff (such as tianine, biotin, inositol, L glicina, zinc...)

I hope it's not taking so long to feel better.

What do you think?

[Cbgs]

I think the best supplements to take are the ones you personally need,

Meaning: I go to an integrative dr

They do routine blood draws to see what's amiss

Pwp typically need glutathione,

Anti-inflammatories like tumeric

Green tea

Omega 3 oils

Be sure you're getting the purest ingredients and ck for gluten / wheat / soy free

I hope this helps

Best regards

C!