A very interesting article on why PD hasn... - Cure Parkinson's

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A very interesting article on why PD hasn't been cured

Maxkas profile image
10 Replies

m.huffpost.com/ca/entry/973...

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Maxkas profile image
Maxkas
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10 Replies

Therefore, there is a good chance I do not have PD.

7. Clinical diagnosis, particularly in early PD, is not always accurate.

Currently the only true confirmation of whether someone has Parkinson's is at autopsy when abnormal protein deposits called Lewy bodies are found in the brain. One study showed that when Parkinson's is diagnosed based on a physician's evaluation, less than 60 per cent of patients who were diagnosed with early PD, actually had the disease at autopsy

Hikoi profile image
Hikoi in reply to

What is early pd?

Excellent article

in reply toHikoi

dx under 60yo

Hikoi profile image
Hikoi in reply to

Ah yes that is early onset but i think the article was referring to the early stages of pd, do you agree?

I i was wondering what you (and others) would consider as early stage. Im guessing that means first few years after diagnosis. I would say that anyone diagnosed with PD who after a while shows no signs of classic pd then they were misdiagnosed in the begining. But then i have never met anyone cured of Parkinsons. If we accept that there is a high incidence of misdiagnosis then we should be sceptical of miraculous claims made by early diagnosed people.

Some of the utube claims are unbelievable like "i had pre parkinsons and i cured myself". Pre-parkinsons is a non existent disease, self diagnosed, self treated and miraculously cured - people accept and believe all on the persons word!

bertilu profile image
bertilu in reply toHikoi

Yes I think that it refers to early stage PD. Otherwise I'd like to be in the 40% not affected...

Bazillion profile image
Bazillion

Thanks for sharing great article

RobertoOcana profile image
RobertoOcana

Great article. I think it must be a read for all pwp and close family. Meanwhile I will continue with C/L, exercise and praying

JohnPepper profile image
JohnPepper

I want to pose a question to scientists: If Pd is caused by the damage done to bran cells in a certain area of the brain, then what would be the result if the cells damaged in my brain were not the same cells as those damaged in anybody else's brains? In my opinion it would be the answer to this question! Does Pd affect the exact same cells in everybody's brain? I think not!

If each cell has a specific purpose, then the result would be different symptoms in different people. If my thoughts are wrong, perhaps somebody would tell me in what way they are wrong.

rhenry45 profile image
rhenry45 in reply toJohnPepper

You are probably right. That is why is different for everyone.

silvestrov profile image
silvestrov

My general feeling in regards to why PD is so hard to treat, and every PD patient seems to manifest different symptoms (and reacts differently to the various medication), is because there are multiple causes of Parkinson's and Dr. Borody's question is relevant to this thread:

"Is PD becoming more of a 'syndrome' where subsets of patients can be characterized by different causes of the disease (eg. Pneumonia can be caused by various pathogens)?

cdd.com.au/pdf/posters/Park...

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