Nilotinib & Parkinsons with LBD

[Paddler4]

I have had my husband taking 200 mg Nilotinib daily purchased in Mexico for 16 months. It see to have helped him physically, & has perhaps slowed the progression of his Lewy Body Dementia. Has anyone been on it for that length of time & how were your results?

[987--789]

congratulations. have been watching the information on Nilotinib for about a year now and

like you I have gotten impatient with the clinical trial progress. I tried to buy it from a pharmacy in India but was unable to do so. Would you be so kind as to provide me with

your contact information in Mexico many thanks Dennis

[987--789 in reply to 987--789]

Sorry to bother you again, but I have decided my best course of action is to follow you to mexico. Could you please give me the contact [email] information for for your Mexican oncologist. Thanks Dennis

[Paddler4 in reply to 987--789]

Dennis

You don't need to visit an Oncologist I think any doctor will write you prescription for the drug. We saw Dr Maria Cuevas [e-mail] & purchased at Farmazias Especializadis. Good Luck!

[Paddler4]

We first saw an Oncologist who ordered blood tests , then aCardiologist to make sure there were no heart issues. The Oncologist in Puerto Vallarta gave us a prescription which we purchased from Farmacos Especializados in Guadalajara. It is not cheap costing about $40 Canadian a day

[bantumi in reply to Paddler4]

Dear, wich kind of improvement has had? He knows anyone else who is testing nilotinib with Parkinson's or parkinsonism?

[Paddler4 in reply to bantumi]

We know no one else trying the drug. I hoped to find someone on this blog. His improvement has been less stiffness & better balance & walking ability. It has not helped cognitive function, but perhaps is delaying further decline.

[bantumi in reply to Paddler4]

it's really important the we found another people that try nilotinib. For me is more expensive and we can try because 40$ for day is too much.

[bantumi]

dear Paddelr4 i send you a private message. you read it ?

[Bretray]

Which heart conditions are considered to prevent prescribing this drug?