First comes the Thought...: As a former... - Cure Parkinson's

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First comes the Thought...

Fredzu profile image
43 Replies

As a former mental health therapist, I knew the importance of Thoughts in the outcome for patients.

Now that I have PD, I am even more aware.

Thoughts provide the gateway to Feelings and feelings end up as Actions

What if we could control feelings by short-circuiting thoughts? Especially those non-constructive ones?

Has any tried this?

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Fredzu profile image
Fredzu
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43 Replies
12stargate profile image
12stargate

Fredzu

I too am a teacher of metaphysics,

I too hated it when i was given the diagnosis 6 years ago.

Controlling feelings? Does not work for me!!

What works for me is to let the feeling in and accept it.

Then i find out the feeling comes bearing gifts i.e. why i feel the way i do.

PD in many ways is a gift for me. It is putting me in touch with my human self.

Blessings to you from Eva G.

Robbo1 profile image
Robbo1 in reply to12stargate

Eva G, you are a remarkable person! X

Boyce3600 profile image
Boyce3600 in reply to12stargate

This is a wonderful way of thinking. Would u mind giving a specific example from one of your feeling experiences?

Fredzu profile image
Fredzu in reply toBoyce3600

True story. Two home owners whose houses were caught in mass fires. One man decided to rebuild and started the rebuilding process. The other man packed up his bags and moved. One fire, two different Thoughts.

One man thought about his victimization and moved The other thought about the challenge and rebuilt

Fjohn1

Hikoi profile image
Hikoi in reply toFredzu

Fjohn

You have put your interpretation on the 2 men's actions. This is mine.

The one who left wasn't feeling victimised quite the oposite as he saw it as a challenge and opening up new possibilities. The one who stayed was stuck, he was the victim, his thoughts could not take him beyond trying to recreate what he had lost.

So what does that say about thoughts and outcomes. And who decides what are the right thoughts ? Maybe it also says something about our approach to PD?

park_bear profile image
park_bear in reply toHikoi

Or maybe each one did what suited him best.

Bazillion profile image
Bazillion in reply toHikoi

Couldn't have put it better myself .I go with you on this one

Fredzu profile image
Fredzu in reply toHikoi

There are no right thoughts. Only those that precede feelings.

Hikoi profile image
Hikoi in reply toFredzu

Yes

but there can be mis interpretation of anothers action by mis interpreting its meaning.

My point was you made an interpretation of action which actually was based on your thoughts and i was saying it is not the only interpretation.

We can Misinterpret anothers actions due to our own thoughts about what it meant, so in that situation i can say the thought was wrong if the other persons action meant something different. These 'wrong thoughts' are so often a problem in relationships.

whack-a-mole profile image
whack-a-mole in reply toFredzu

"True Story" UPDATE: I just heard from the guy who packed his bags and moved... he says "victim-schmictim!" He used the insurance money from the house-fire to move to Belize and buy a 2-bdrm condo overlooking the ocean ("one door closes, a new one flies wide open"). He says cost of living's low, standard of living's high (no more house fires in failing neighborhoods) - "life is GREAT" :D

Fredzu profile image
Fredzu in reply to12stargate

I love your Thought..."PD is a gift for me."

What Feeling stems from this Beautiful Thought?"

fjohn1

12stargate profile image
12stargate in reply toFredzu

Fredzu

"Everything works together for good."

With loving kindness, Eva Gabrielle :)

Fredzu profile image
Fredzu in reply to12stargate

You don't Control feelings. Too late. You control Thoughts before feelings can materialize.

Fjohn1

Roseyuk profile image
Roseyuk

How many PD patients are going to find any use in this article?

As I read it, it does not apply to anyone who has been on dopamine medication for over 3 weeks.. ???

Fredzu profile image
Fredzu in reply toRoseyuk

Depends upon their Thought.

Fjohn1

12stargate profile image
12stargate in reply toFredzu

Fredzu

Yes, thought comes first :)

park_bear profile image
park_bear in reply toRoseyuk

I think you are referring to a different thread.

Dap1948 profile image
Dap1948

Yes, yes, yes! This is key! Every person who has successfully beaten PD; Bianca Molle, John Coleman, Howard Shifte and many more, have all BELIEVED they could. The mind controls the body. In the words of Henry Ford "whether you think you can or whether you think you can't, you are right." I say to all - what are your expectations?

Lu45 profile image
Lu45

Think I understand what you mean by this. Tremor in my left hand has increased and is giving me bother. Recently bought a book "Parkinson's the Early Years" Giroux/Farris and found this paragraph. "You may have negative thoughts about your tremor. The more you attach these thoughts to the tremor the greater your negative reaction to tremor during moments you notice the tremor. This distress then creates more tremor"

I am now trying to put this into practice.

Fredzu profile image
Fredzu in reply toLu45

You said it better than I did.

fjohn1

trishtheteacher profile image
trishtheteacher

I wholeheartedly agree. Our thought life is an important part of this battle. Two authors I've learned a lot from are Dr. Caroline Leaf. She has a 21-day Brain Detox program that I've used. drleaf.com/about/toxic-thou...

I also like Andrew Loyd's The Healing Codes thehealingcodes.com/about/

Even when the world tells you that you won't get better, you have to believe that you can and will.

Bouffere85 profile image
Bouffere85

Hello, I met John Pepper yesterday , 81 years old with PD who was able to Reverse his PD as he says, no more Parkinson medications and feeling great , showing no signs of PD ......check his website if you want reverseparkinsons.net/journ...

I am on this new journey starting today!🌞

Chantal

Bouffere85 profile image
Bouffere85

I forgot to mention : watch his video!😉 BEST !

Chantal

Hikoi profile image
Hikoi

Yes cognitive behavioural therapy is based on this, and Norman Vincent Peel wrote about it, so have many since.

Our thought world is important.

But some of the replies suggest that all that's needed is believing enough, is it that simple? So if believing I will get healed leads to healing does it mean I haven't believed enough if I am not healed?

pen1 profile image
pen1 in reply toHikoi

I agree! While thinking positively can be of benefit to our state of mind, it is a dangerously short step away from telling people that they are ill because they haven't had a positive enough attitude ie it's their own fault.

park_bear profile image
park_bear in reply toHikoi

Yes, a lot of simplistic thinking goes on around belief. If we believe we cannot overcome something, that will get in our way, but we need not replace it with its opposite. This speaks to the issue:

"Q. What is the Path of Not-Knowing?

A... Thoughts About the Path of Not-Knowing. ... we are attached to the illusion that we know something, anything, everything, while in fact we know nothing; we have only beliefs. As we release our attachment to our beliefs, opinions and agendas, we become not-knowing and therefore accessible to higher consciousness, which guides us moment by moment. Surrendering to this reality is the commitment to walking the Path of Not-Knowing."

theinnerrevolution.org/the-...

Fredzu profile image
Fredzu in reply toHikoi

If we eliminate that which is too simple, and then erase that which is too difficult, what is left?

Fjohn1

TheresaCurley profile image
TheresaCurley

I've have always been an advocate for positive thinking, but I do think you make it sound too simple. We are dealing with brain chemistry, when the serotonin, norepinephrine and dopamine are not available to the cells to function your body screams out to your subconscious and says --- we are not functioning -- we are hungry for what we need, resulting in depression. This is just as a broken bone says to the brain we are not functioning we need to be fixed, and hurts like a son-of-gun. I've been on the positive thinking band wagon all my life, but I also know we have physical needs to make the body whole.

I can't help but feel very skeptical of these folks that 'cure' their PD with exercise and positive thinking. I have no doubt they are doing very well and are strong and healthy. What I have doubt about is that they truly have PD. I think many (if not all) have Essential Tremors and not PD.

TheresaCurley profile image
TheresaCurley in reply toTheresaCurley

Please don't get me wrong, I do believe that being positive and getting exercise is very important to help us through the PD journey, but I don't think it is a "Cure", and I think saying it is makes those of us who are not able to exercise or be cheerful (not including myself here) feel guilty because we have not "Cured" ourselves.

koshca profile image
koshca in reply toTheresaCurley

truth

laglag profile image
laglag in reply toTheresaCurley

Hopefully I haven't given you the impression I've been "cured" by Rock Steady Boxing? I know I talk about it a lot & try to encourage PwP's to try it but I do that because I know it works well for hundreds of PwP's, even some that thought they would never exercise. PwP's of all levels have gotten amazing benefits from RSB & I would just love to see everyone take advantage of the program. I am in no way cured, but I think exercise has slowed the progression. I understand there are people who just can't exercise for one reason or another, but there are some that can that just say they can't. RSB tries to take other health problems in consideration & helps you work around any obstacles you might have. The PwP's at RSB that are more advanced than I am are my inspiration. Some are in wheelchairs, walkers and/or canes & they still find the strength to come to class and do what they can and they get visible results that help them in their daily lives. Just a few weeks ago one of the guys that started RSB 2 years ago barely able to walk with his walker was walking around the gym, unassisted (but someone right beside him), and at a fairly good pace. As I watched him with watery eyes, I just couldn't believe the difference it had made. I said, Great job Don! And he gave me the biggest smiled. Made my day!

Beckey profile image
Beckey in reply tolaglag

LL, I really, really needed to hear that today! Thanks for the post. There's an RSB class tomorrow and I'm so there!

TheresaCurley profile image
TheresaCurley in reply tolaglag

This sounds like a wonder outlet and great exercise but my exercise is a walk in the morning now that the weather isn't so hot. I'll keep to that because I really enjoy it. I can't imagine myself boxing in any way shape or form.

Right now I'm doing a 1/2 mile in 20 minutes. I know it doesn't sound so great but I'm thrilled because before my meds I couldn't do that. I'm hoping to slowly increase my walks until I can do a mile each morning.

laglag profile image
laglag in reply toTheresaCurley

Theresa,

You're doing good if you're out there walking. Your time and distance will get better if you just keep it up and it will help you feel better.

As far as boxing, it's non-contact boxing, we just hit bags, not people. If you will just give me 9 minutes of your time, listen carefully to the 1st two YouTube videos I attached, especially the 2nd one by Leslie Stahl. You say you can't imagine yourself boxing in any way shape or form, that's basically what one of the gals I met in class said. Take a look at this video and listen to Mary at point 1:54.

youtube.com/watch?v=kK7wJt1...

Here is a video that Leslie Stahl did with her husband that has PD. He goes to an affiliate in New York. There are now over 200 affiliates in the U.S. as well as a few overseas. If that doesn't tell you it works, I'm not sure what will. As I said, it's not a cure, but it helps slow the progression and it makes living with the disease a little easier on a day to day basis. In this video there is also a professor that has done a study that shows exercising does help. Listen to this one carefully, it explains how the boxing helps.

youtube.com/watch?v=EfDHGbu...

And, we have fun! This video is just one where we're having fun:

youtube.com/watch?v=_aEnLmt...

I'm not trying to belittle anyone for not being able to exercise, I'm just trying to help some of you feel better, that's all I want to accomplish.

Thanks!

Debbie a.k.a. "Boom Boom"

TheresaCurley profile image
TheresaCurley in reply tolaglag

I'll check the videos out in a minute, but I was wondering how you were able to imbed them in the reply. I don't see anything that shows how to do that.

laglag profile image
laglag in reply toTheresaCurley

I just did a Ctrl C to copy the YouTube address & then went to my reply & did a Ctrl V to paste it & it just did that. I thought it would just copy the address?

TheresaCurley profile image
TheresaCurley in reply tolaglag

That's cool. I'll remember that.

TheresaCurley profile image
TheresaCurley in reply tolaglag

The link did not work for me on the first or last video but the one in the middle was very informative. It does look beneficial. I live in a rural area in Arkansas and doubt there is any place around here that offers anything like this. Seeing the folks do their punching and exercises made it clear for me. Thank you.

TheresaCurley profile image
TheresaCurley

Please don't get me wrong, I do believe that being positive and getting exercise is very important to help us through the PD journey, but I don't think it is a "Cure", and I think saying it is makes those of us who are not able to exercise or be cheerful (not including myself here) feel guilty because we have not "Cured" ourselves.

Enidah profile image
Enidah in reply toTheresaCurley

Thank you, Theresa. You are a level-headed gal.

JohnPepper profile image
JohnPepper

Hi fjohn. Are you talking about those thoughts you cannot get rid of in the night? If so, have you tried concentrating on the sound of your breathing? If you aren't making much sound then start to do so. Breath as deeply and as slowly as you can and concentrate on just that. Those thoughts all disappear.

llwwd profile image
llwwd

I have just started reading Goodbye Parkinson's Hello Life by Alex Kerten. It seems to be all about the breathing exercising and movements to help eliminate symptoms (not cure) Parkinsons. I agree with Theresa and 12 Stargate. This book explains the body-mind connection and gives exercises to music & movements. I highly reccomend it.

llwwd profile image
llwwd

laglag, the Rock Steady Boxing looks like it would be of great benefit & fun.I will look to see if there is anything in my area. Thanks for the video. The middle one was the only one to work though.

llwwd

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