Meds are killing her!

[Wheatgirl53]

Would like to learn more about Parkinson's.

My mom has been fighting it for 2 years and it seems that the Meds are worse than the desease.

[Hidden]

When you say the Meds are worse than the disease do you mean side effects..??

[Wheatgirl53 in reply to Hidden]

Hi. Yes. After listening to doctor's advise on dosage with carbadopa we are now trying to detox her with Neupro patch and cdopa. Long torchrous ordeal. She's skin and bones. After a few trips to emergency, we found another doctor. Fingers crossed.

[Hidden in reply to Wheatgirl53]

Hope all works out ok and she makes a rapid recovery...

My first neurologist was shocking.. She never seen me for at least 18 months after i was diagnosed...So i asked for a referal to someone else... So if your not happy ask for a referal & make sure she is well looked after... Good Luck..

[Wheatgirl53 in reply to Hidden]

Thanks for the advise. I'll pay close attention. Healthy Diet has helped.

[Wheatgirl53 in reply to Hidden]

Thank you..

[Hidden]

Patients like me data

patientslikeme.com/conditio...

National Parkinson Foundation - Joseph Jankovic, MD

What are the different forms of Parkinson’s Disease?

youtube.com/watch?v=pf6BGBl...(Not working as expected?)

New Parkinson's Disease Treatment Guidelines

umm.edu/news/releases/pdg.htm

[Serenity_finaly-1 in reply to Hidden]

Great video Roy, good info.Have to give you Props.

[redean in reply to Serenity_finaly-1]

like your sense of humour Hal-9000

[Serenity_finaly-1 in reply to redean]

Thank you, I lost it about 4 years ago. I am now dusting it off and will continue to polish it.

[999---666 in reply to Hidden]

i'd say I have pigd parkinsons, I don't have tremors but I have gait and balance problems. that bit about eventual decent into dementia is bad news.....and there is no warning of this so far....inclined to look further for my dxn, because I am getting better, my leg is stronger. ( that and am easily fatigued are my only symptoms.) problem is I live in the country and have a lot of physical labour to be done and i'm pushing myself for the time being thinking it's equivalent to physiotherapy...I get setbacks with my balance problems, lower back pain,....but after a few days rest it improves?!?

[Wheatgirl53 in reply to Hidden]

Looking into it. 👍🏼. Thx!

[rhenry45]

I guarantee this will help her. healthunlocked.com/parkinso...

[p-oui]

Wheatgirl, seeing a good movement disorder specialist neurologist will make a difference. In my experience over the last 4 months they don't all agree so I think it helps to see more than one doctor. The insurance should cover multiple visits to different doctors because PD is so complex. I haven't had an issue with it as long as they are in plan. Your picture is very sweet. I am hoping you get some good care for your mother.

[Wheatgirl53 in reply to p-oui]

Thank you. p-oui I'll check into that.

[JohnPepper]

Hi Wheatgirl. You may not be aware that Pd medication is not meant to slow down the progression of Pd it is designed to treat the symptoms. So, taking medication is not the answer. The only thing I know that does slow down the progression of Pd and that is EXERCISE!

You may not fancy doing exercise but if you want to stave off the effects of Pd, that is your only choice. I have been very fortunate! Because of back problems I have had to do exercise to keep my core muscles strong, so when I was diagnosed in 1992 with Pd I increased my exercise to 90 minutes per day, six days of the week. Guess what? My condition progressed much faster. In 1994 I stopped going to the gym and started doing FAST WALKING. Within 4 years my movement symptoms had improved so much that nobody would ever know that I still have Pd. In 2002 I stopped taking Pd medication and have been off it ever since.

No! I am not cured! I am almost free of movement symptoms and I have managed to control some of the other symptoms and have lived a 'normal' life since 2002.

If you are serious about doing exercise, which costs NOTHING then look at my website reverseparkinsons.net. and contact me.

You may have heard of Dr Norman Doidge, who wrote two books on 'Neuroplasticity'. He is a world expert on brain problems, and Pd is a brain problem, not a body problem,

He came to see me in 2011 and he checked all my medical records with my doctors and satisfied himself that what I am telling you is 100% true. So why waste time and get stuck into helping your brain recover from the Pd?