I have been diagnosed since May 2016. I took Carbadopa/Levodopa for a month and got very sick so I told my neurologist I didn't want to take anymore pharmaceuticals. I asked if he cold recommend a Natropath and he declined saying natural medicine did not help. I found a product called IMMUNOCAL and took it for one month and nearly all of my symptoms were reduced by 80-90%. My strength and balance came back and I didn't have any of the awful side effects of brain fog and nausea and vomiting and dizziness that I had on C/L. My understanding is that the medicines prescribed don't affect the progression of PD they just mask the symptoms so I thought if I can live with the symptoms at the level that I have them I am not hurting myself.
The two symptoms that still bother me are my slurred and choppy speech and my poor handwriting. Any suggestions of what kind of speech therapy I should look for and I assume occupational therapy for my hand? I do not have any tremors.
Written by
cowgirlauren
To view profiles and participate in discussions please or .
TY for your offer..I'm not feeling great these days and am feeling lost. My symptoms seem to be progressing and my neurologist is gone for a year. Not sure what happened to accountability..I take Sinemet 100/25 3 tabs every 3 hrs and the neurologist told me there wasn't any more she could do. I've also read about Murana(spelling) which is a natural dopamine product..any thoughts there?
I have heard good things and am going to try it my symptoms get worse someday. Why don't you try the IMMUNOCAL? Take 3 pouches /day. 1 regular and 2 Platinum. Can't hurt as its all natural. Just boosts the immune system.
Hi Cowgirllauren. Yeah good luck with the natural remedies. However you've only just been diagnosed. A couple of months on the Levadopa is not really a long enough test for them .
Yes you do get side effects but have to put up with these for a while .Nobdy says it will be an easy ride.
I say this because my experience shows me I was poorly for a while but now after two years of Levadopa most of my symptoms tremors,bradykenesis fatague etc have reduced by 85- 95%.
My neurologist tells me that this shows that I definitely have PD and now they can handle this successfully unlike an illness called Parkinsonims which is very like full blown PD but can not be treated the same..
Suggestion. Go back to your neurological team and ask the question Have I really got PD or Parkinsonims?
If the latter then this is why your holistic remedies are working.
I agree. My regular neuro prescribed C/L 25 100 every 5 hours at my first diagnosis because I had tiny handwriting, a slight left hand tremor and slight shuffle (at the time I was due for bunion surgery and was wearing UGG boots so my shuffle may have been from that). My symptoms improved almost the first day of taking the C/L which meant I guess that I had PD. I had no nausea etc. Maybe you should try again taking every 5 hours at first instead of every 3 hours. PWPs can evidently get addicted to the meds so the less we take the better, I think. I have had the same med (only C/L) for over 1.5 years and have no symptoms.
I prefer to have a more positive outlook. There are many different approaches and plenty of other people who have had success with them. I will stay with it. I don't see why I should have to put up with being sick from side effects. Thanks for your concern and I hope you have continued good health.
Try cycling for handwriting - either on a stationary bike or a moving bike. It helped me. I also swim - and I take Mucuna and a small amount of carbidopa/levadopa (1 pill a day of 100/25)
Thanks Allyn. I am cycling and using the treadmill but want to be more regular. I will consider C/L 1 pill a day in 1/2s. Or I may just try Mucuna. Is there a reason you do both?
When first diagnosed (by my husband) in 2013, It took 5 months to get an appointment with a neurologist. In the mean time, I read and read. Started Mucuna and it seemed to help. When I finally saw a neuro - I was less inclined to add traditional meds. After another year, I was seeing some progression so started adding the sinemet - very slowly - and just 1 pill a day ( 1/2 in the AM , 1/2 around 1 - 2 pm) seemed to do the trick. It seems like it boosts the Mucuna.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Parkinson's and me
Possible improvement of speech in Parkinsons patients with the encouragement and implementation of a daily walking routine. 
B1 Therapy question
Please lift us in your prayers
