Coq10

[AmmieM]

Has anyone had experience with taking 1200mg of coq10?

[eilatu]

After reading about the trials with the 1200 mg CoQ10, I took this concentration for about 6 months. Didn't see any effect, and I had a lot of problems bringing it to my country with this huge concentration + it cost a lot, so I dropped my portion to 400mg , and hope it will be better then nothing. I don't take now the CoQ10, but the Ubiquinol, which is said to be absorbed better, and more effective.

Good luck.

Eu

[AmmieM in reply to eilatu]

Thank you

[longsuffering]

YES YES YES It has been the only thing that ever helped the symptoms, no medications ever have. We get our from whole health on line ion USA as the capsules in australia contain such small doses as to be useless. I believe that the Mayo did work and up to 2000 per day is good. we use 1200 as it has to go into my husbands PEG and it is hard to use-have to watch carefully to exclude any little hard lumps ion the powder when you tip it out of the capsules as they can block the tube and that is not good.

When I get a few minutes I will post again with more info.

[AmmieM in reply to longsuffering]

Thank you so much

[longsuffering]

Sorry about the spelling above- ion is supposed to be "in"-bad typing.

[Hidden]

My husband has been on 400 mg coq10 for 15 years and is still walking. The Dr wouldn't go to 1200 mg. but felt 400 mg a day couldn't hurt him and might help.

Of course, he has also been on the usual meds prescribed for pd.

[Donzim]

yes. ages ago when it was first investigated and introduced. we had to order it in huge wafers from japan. flint beal from columbia did the research and our doc talked to him after i gave a double dose by mistake. he said it didn't make any difference, that they were using that amount in their research centers across the country. it also doesn't make any difference to stop it suddenly.

[Donzim in reply to Donzim]

We were using 2400mg at the time and beal said that was ok but probably down to 1200mg. You can get it liquid but dose is low.

[Donzim in reply to Donzim]

We were using 2400mg and beal said it wouldn't hurt but 1200 was probably enough. Our experience was that it stopped the progress but didn't reverse the symptoms.  That was early on when it was in wafer form and imported only from Japan. That reaction turned out to be the same in a number of later studies.

[hopedope]

I remembered reading about coq10 in the book I'm going through right now, The New Parkinsons Disease Treatment book by a Mayo Clinic doctor who has treated many PD patients for 30 years.  I found it in his index under coensymeQ10.  He says in his first edition of the book a small trial was administered to PD people.  They found that300 and 600mg were no better than placebos. Since then, two other long-term trials with many more PD peope using 1200 as well as 2400 mg failed to show any benefits.  Hence, he says, it appears that the book is now closed on COQ10 treatment of PD. His book was updated in 2015.  You can see Dr.Ahlskog on you tube talking about his first book.  I don't think there's a newer you tube.  I suppose the treatment could come back as a possibility though.

[silvestrov]

Yes I have been taking 1,200 mg/day for years and it made a huge difference.  Prior to taking it my chest had neuro muscular fasculations - twitching, which were quite visible.  Upon taking it the twitching went away and I have been taking it for years.

[Hidden]

I took 1200 mg of Coq10 when I was first diagnosed with Parkinson's.  I was able to take that and stay off the PD meds for about the first 3-4 years  and believe that it helped make the period of time before i had to go to Sinemet longer.  I was diagnosed when i was 28, i have had PD for 15 years. i can still walk with the use of a cane or walker but all the PD meds are starting to show side effects that i feel are worse than the PD.  Everyone is different but i definitely believe that the holistic approach is the better approach, as long as you are able to function.  Hope my reply helps.