The Future??

[imshakydad]

See my latest blog at: imshakydad.wordpress.com/20...

[JohnPepper]

Hi imshakydad. I have read your blog and wonder how old you are? I have had Pd. symptoms since 1963, although I was only diagnosed in 1992. I had to give up my high-powered job that year and prepare myself for that rocky road ahead.

In 1994 I decided to fight this terrible affliction and joined a program here in South Africa called, "Run/Walk for LIFE" . After 8 years of walking at my personal fastest pace, I had become so much better that I was able to come off my Pd. medication and have not had to go back onto it ever since.

I am now 81 years old and I have just finished doing a 7 kilometre walk in less than 1 hour and having had a shower.

Why has this happened to me? Well! I think it has had a lot to do with what Dr Beth Fisher told the whole world at the 1st World Parkinson's Congress that was held in Washington DC in 2006. There she told us all that her extensive double blind scientific studies showed that FAST WALKING produced a natural substance in the brain called GDNF (Glial Derived Neurotrophic Factor), which REPAIRS DAMAGED BRAIN CELLS.

That is correct! She told the whole world that if we do FAST WALKING our brains produce a repair kit for Pd.

Now I thought this would have caused a whole tidal wave of activity with Pd. patients taking up fast walking, which I had already been doing since 1994, but it didn't even cause a RIPPLE. I wonder why that was? Is nobody interested in getting better? Are Pd. patients unable to walk fast? Did the medical profession not get this exciting news in 2006?

Who knows the answer to this question? I have my own theories, which more or less revolve around the feeling that we have here a, "CONFLICT OF INTEREST". It is not in the interests of the pharmaceutical industry or possibly the medical profession for Pd. patients to get better, AS I HAVE". But that might seem a little cynical.

Nevertheless, apropos your fall and subsequent vision of the future, IT DOES NOT HAVE TO BE THAT WAY! There is something you can do about it. I am not selling anything nor am I trying to get rich on other people's problems, I am just trying to tell the whole world that nature has its own way of healing the damaged brain cells, although it has not got a way of stopping Pd. from continuing to damage our brain cells.

There is something else I have learned from my journey with Pd. It is this: PD ONLY AFFECTS MOVEMENTS THAT ARE CONTROLLED BY OUR SUBCONSCIOUS BRAIN!

That is correct! That means that if we re-learn how to control our movements using our conscious brain, then WE CAN!

I have been able to show hundreds, if not thousands, of Pd. patients how to walk properly by using their conscious brain. This only takes seconds to do and it works like MAGIC. Here again, I am not charging anything for this incredible piece of information, but it is worth a fortune.

Why not go to my website - reverseparkinsons.net and see how you can do many things to make your life better and become as healthy as I am now.

Good luck!

John Pepper

[Hidden in reply to JohnPepper]

You could get your message across with out saying this

"Now I thought this would have caused a whole tidal wave of activity with Pd. patients taking up fast walking, which I had already been doing since 1994, but it didn't even cause a RIPPLE. I wonder why that was? Is nobody interested in getting better? Are Pd. patients unable to walk fast? Did the medical profession not get this exciting news in 2006?

Who knows the answer to this question? I have my own theories, which more or less revolve around the feeling that we have here a, "CONFLICT OF INTEREST". It is not in the interests of the pharmaceutical industry or possibly the medical profession for Pd. patients to get better, AS I HAVE". But that might seem a little cynical."

You are right it is cynical.

Leaving this out makes it more about PD and less about you.

So be positive and you will convince more people to try your way.

Just relate the positive things about your way of dealing with Pd.

Please take this as constructive.

[JohnPepper in reply to Hidden]

Hi Donny-c. I don't quite know how to take you! You sound quite likeable in this post. I have to say that I have found it very difficult to get over the way the medical profession seem to have blocked every avenue they could to stop me telling patients my story. But like the Germans I suppose there comes a time when I have to get on with what is and forget about what was.

Perhaps we can even get to like each other!

John

[Hidden in reply to JohnPepper]

Never said i did not like you. Just your approach. Drive home your message with the positive things in your life. i try not to dwell on the hell i went through to get to this point. You are right about meds and their side affects. But they do more good than harm. It is just the balance that has to be worked out. With out meds i would not be able to get out of bed. I do not have tremor but a host of other symptoms all relieved with meds. sinemat 25/100 2 tabs 5 times a day azilec 1 a day

Requip (Ropinirole Hcl) 6 mg 1 at night

I take them with no side affects

By the way I adjusted my meds myself with a starting point from my Doctor and he wrote the RX, to match

He is great

He works in a research hospital so he is open to new approach

Can't get him on board with exercise but working on it.

You and I are a lot alike bull headed, determined, Nd stead fast.

Good luck and gods speed

[JohnPepper in reply to Hidden]

Hi Donny-c. Your message is like manna from heaven. I have apologized to you before, but I do it again in all humility. Thank you.

When I became accustomed to total lack of cooperation from doctors, other than my own, my approach had to be aggressive in order to survive in this strange world.

I understand their position. They find it hard to deal with uneducated lay people, not realizing that we don't need any university degrees to get Pd. because it can strike any of us.

They on the other hand could gain a great deal by listening to what patients tell them, because they only learned about Pd. from books and books do not keep up to date. We have learned about Pd. by recognizing the symptoms every day and understanding what they are doing to us.

Because no two Pd. patients are the same, there are bound to be many variances in approach to the Pd.

Where do you live?

As you may have seen, I intend to visit all the English-speaking countries to show people how to overcome many of the Pd. problems. I know you think I should go to all the other non-English-speaking ones as well, but not being able to speak any other language, that is a step too far for me. I would willingly go if someone would act as interpreter at no cost to myself, as I am not a wealthy man and this world is a big place.

I have been to Holland because someone there acted as interpreter, even though most people there speak English. I did not go anywhere other than Amsterdam but it was very successful.

Here in SA I have much less success because the neurologists have been telling their patients that I don't have Pd. and they must not listen to what I say. Who would most people prefer to listen to? Their doctor or me? In this case the doctor wins and the patient loses. Even my own best friend continues to listen to his doctor and is going downhill very fast at present and it breaks my heart to watch him.

Have you tried fast walking, or do you battle to walk?

Kind regards

John

[Hidden in reply to JohnPepper]

Nice to hear from you

I live in Dallas Texas USA

By the way i don't have a oil well, or a horse. don't wear cowboy boots or hat. I am a native Texan born in Dallas live within 15 miles all my life.

I have no issues of any kind. I do crossfit 6 days a week. Bike 15 miles at least once a week , weight lifting every day.

Today at crossfit we ran 400 meters,30 push ups, 30 pull ups, back squat 185 lbs,200 lbs, 235 lbs, and a personal best of 265 lbs and that was just the warm up. The work out for today was running 400 meters then rest 2 minutes and repeat 4 times a total of 1600 meters or about 1 mile. I did the mile in a little under 8 minutes.

I am not sore , have little or no pain.

This routine along with meds keep me symptom free.

I am retired so these things help me pass the time.

highexistence.com/boost-bra...

This website says this about CrossFit

Exercise

Cardiovascular exercise such as running, interval training, cross fit and or yoga are the single most effective ways of boosting neurogenesis; they come with a vast array of health benefits for mind and body, and are also important stress relievers. The endorphins produced acting as a potent antidote to cortisol, the stress hormone. Exercise has been found to increase levels of brain derived neurotrophic factor (BDNF) and glial cell line-derived trophic factor (GDNF), two key growth factors supporting neurogenesis. It also increases hormones such as testosterone which also seem to have a extremely beneficial effect on neurogenesis, and act as a buffer against the effects of psychological stress. This is increasingly more important as we age.

Fast walking Crossfit two of a kind.

Thanks for all you do

I too am working on my neurologist to get him to at least look at exercise. He works and is involved with a research hospital and is open minded. It took a year to get my first appointment with him.

He is very well known.

I adjust my meds as i see fit and he adjusts the Rx to meet my needs.

[JohnPepper in reply to Hidden]

Hi Donny-c. I have been to Dallas on 3 occasions and have been to the National Institution of 'Southfork', which was a bit of a disappointment, but movie business is not there to be accurate or truthful, it is there to entertain, which it does very well.

I have no doubt at all that all exercise is good for Pd. What I am not sure about is how much GDNF is produced by what you do, compared to fast walking for 1 hour. It would be interesting to find out. I am led to believe that when we walk fast for a prolonged period our brain thinks we are in danger. When we are in danger the brain and body produce 'Growth Factor' for every different type of body and brain cells. Fast walking is not natural, at least I don't think so. If we want to go fast we would normally run. Fast walking is not easy, it is difficult. We have all heard of 'The Fight or Flight' syndrome. When we fight or run fast we tend to get injured and we would not have survived as a species if we could not repair mild to moderate injuries. So maybe I am the lucky one who did the right thing at the right time and reaped the reward.

I must add that when I am unable to do my fast walking because of injury or other health problems my Pd. symptoms come back like clockwork. Hence my constant claim that I am not cured. The Pd. continually attacks my brain while I continually walk fast 3 times a week and stay well.

If I come to Dallas some time next year would you be interested in getting some Pd. patients together to watch me show many of them how to overcome many of their movement problems?

Kind regards

John

[Hidden in reply to JohnPepper]

Don't know any one with PD but know of some groups.Could give it a try.

[JohnPepper in reply to Hidden]

Hi Donny-c. It would be very kind of you to do that for me if you could. I will supply all the information if you do find anyone interested.

John

[imshakydad in reply to JohnPepper]

nice that u can connect with someone on line but r u aware that u and donny-c seem to be carrying on ur conversation in my thread? i for one, am getting sent notices overtime either one of u says something!

[imshakydad in reply to Hidden]

nice that u can connect with someone on line but r u aware that u and John P seem to be carrying on ur conversation in my thread? i for one, am getting sent notices everytime either one of u says something!

[JohnPepper in reply to imshakydad]

Hi imshakydad. It happens when anybody responds to a post and others wish to respond to that person. I did not mean to give you extra work.

John

[grower]

Thanks for another thought provoking blog