For 11 years I coped with chronic insomnia, I've been DX 12 years.
Everyone told me PD disrupts your sleep pattern so I accepted it. I adjusted to 3 hours a night, filling my time positively and usefully. I just have long days ! I'd joke!
I never took sleeping pills. In my opinion it's the wrong kind of sleep.
Plus who wants another drug we all rattle as it is.
3 months ago I had reason to change my drugs. It meant cutting one out completely. After 4 weeks I suddenly noticed my sleep improving, I began to dream, amazing. Now I'm 8 weeks in and have a near normal sleep pattern.
I no longer look like a ghost!
This is just a personal account, I have no medical qualifications.
what was the change in drugs that you feel has caused the change in your sleep? Did you have insomnia or Restless Leg Syndrome?
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I stopped Mirapexin
No, no restless legs
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Its called Mirapex in Canada and I am taking small dose for RLS as well as the Sinemet. I've had numerous unpleasant side effects but haven't been able yet to stop Mirapex. What side effects did you experience?
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Horrendous ... Hallucinations, compulsive spending, paranoia, low self esteem, suicidal..... The list goes on...
All completely gone now
Slow recovery but 1000 times better
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I wud be interested to know why you were prescribed Mirapex in the first place, and how long you took it. Thank you for being open to such discussion.
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Mirapex works
The rest is a long story
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Ps honesty is the only way we can all understand and help ourselves improve
I found once I stopped giving John the neupro patch his choking at night eased .
I stopped Mirapexin
But please do NOT make any changes to your medication without consulting your Neuro team. This drug does greatly improved motor symptoms but it couldn't tolerate it anymore, I believe it's use should be very strictly controlled.
It does not necessarily follow that sleep improvement is a given if you remove it, but it is what happened in my case.
For me the benefits of not taking it significantly and overwhelmingly now out weight its effect.
Have you tried taking Melatonin? It's a natural hormone produce by the body for sleeping. I take between 1 to 3 mg when I have had 1 or 2 consecutive bad night. It's OTC and no side effects, take 1 hour before intended sleep. Can get up to bathroom and immediately go back to sleep m
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