I've gotten significantly worse in the last few months and would like some advice. My primary symptom that resulted in diagnosis, other than milder arm and leg tremors, was jaw tremors. In the last few months I started having daily episodes that would start as vibrations in my legs, then move up to contractions in my torso, then always to violent jaw tremors and wild shaking of my head. Lately my left hand is involved and sometimes I yawn a number of times during the episode. I don't lose consciousness. They last about 5 minutes. My friends who have witnessed this say I have bounced up and down in my chair and they thought I was having a seizure. I feel totally out of control during this period, although I am conscious. I'm just waiting for it to be over, and for the pain in my face to stop. Afterwards I am utterly drained and have to lie down and rest or sleep for 15-20 minutes. I can't talk, or can talk only in a low voice with much effort.
I can't drive anymore because of these. I was just diagnosed in August, but recently my neurologist said he thinks maybe the tremors are from depression. I think he's really inadequate. I've treated hundreds of cases of depression myself as a psychologist and I absolutely know this is not depression.
My question: is this just what a really severe tremor is like? I've asked for a referral to a movement disorders specialist but have to wait for 2 months.
Am waiting for an MRI and an EEG.
I'd be thankful for any advice you can give me. My family is really worried. It's a stressful time.
Leilani