One day last week I felt so well, showed no symptoms for the whole day and convinced myself the diagnosis six months ago for Pdism was a mistake. Then wham! The next day I could barely move without wobbling and quivering.
Anyone else experience this and is it something I am to expect as times goes on.
This what I call the Parkinson puzzle, The nerve system is a funny working animal. I have what you describe all the time. As the disease progress' I find this happening more, however I believe medicine, diet and over health play a huge role in this also. I don't think there is an easy answer to your question, we all react differently and you will need to find what path works for you. DON"T GIVE UP!! Pd would love to ruin your life, don't let it!. Keep busy stay safe and enjoy the life your in charge of.
This is the way it goes, take you good day as a gift, ever day brings a new or changing scenario. My husband has PD, and always believes he has found a way to feel better, then the ground moves under him.. It is hard to plan anything even for the next few hours, we are never sure how it will go. Staying positive helps.
If I don't take my medications right on time I will get feeling the same way the next day. I guess it catches up with me but if I stay on my regiment that I'm on now I seem to do pretty good. In Feb 4 years ago I was diagnosed.. There have been many up's and downs but my faith has helped me ALOT!!!
A couple of weeks ago I felt fabulous. No tremor, no jelly legs - back to the way I felt before Parkinsons. This lasted for about a week. Then bang one morning I was back to the person with Parkinsons. This has happened to me before, but has not lasted for such a long time. Guess it goes with the Parkinsons diagnosis.
I am like that as well. Some days I am on top of the world and feeling normal then wow. I a wee lie wobble life size. I think it is something we have to live with. Makes for interesting conversations at time. Keep the humour within you it helps. It also helps to know we are not alone.
Wellcome to the club, for the last couple of days/PD had me as a wimp, I slowed down to a snail pace and stoop and bent due to lack of sleep for over 3 nights, then 2 nights ago I slept from 7PM to 6:AM the next day with 2 interuptions to pee. The following it was AS if I was cured of Pd, then at 4;pm PD symptoms returned/
The first few years I was dx with pd, there would be days or parts of days that I would feel perfectly normal. I was in denial for several years, until I began having more and more trouble walking (my main problem). It was about 10-11 yrs to admit it's pd. Now I've had dbs without too much success yet, but I'm still hopeful .
I wonder if the cause of these symptoms might be diet-related. Whenever you have a bad day, make note of what you ate during the 24 hours leading up to the bad spell, especially what you ate just before it hit you. It may be certain foods or ingredients are interfering with your medication. It might even be worth keeping a food diary.
We've noticed that animal protein (like dairy), chinese food (when containing msg), and greasy foods like chips (USA french fries) lead to my husband having bad days, or more frequent 'off' periods over the next 24 hours.
We try to avoid foods containing neuro-toxic chemicals like msg, and especially aspartame (an artificial 'sweetener' found in diet drinks and many foods that is known to interfere with medication)), so consider checking the list of ingredients in your food too. For more info on aspartame, check out this link - rense.com/general67/rum.htm
You will be shocked.
If my husband happens to forget a dose of his medication, we've noticed that most of the next week becomes very difficult, very up and down.
Has anyone else discovered any foods that trigger a bad spell?
Thankyou everyone who replied to my post. It's good to know you have similar thing. I was being to feel like a fraud on my good days. I have noticed I don't handle stress very well, and it highlights my trembling.
Oh I know this! Some days I can do everything, and I`m happy. The next day I`m so tired. It`s not a system of tired and good days, but my legs tremble if I take my Levodopa about the same time as I eat protein- food. Sometimes....
Sonimodul Diagnostic Assessment Day, what should I expect?
I lost a day
Sometimes A Bad Parkie Day
A new day
Bad Day!!!
