Input

[gurdeep11]

Hi fellow Parkies, I would like to know if and how many of you were diagnosed in your 30s or had it before diagnosis and how did you manage it, please take out some time and reply. Thanks

[PatV]

Dx at 64. Good luck to you!

[Susie01]

Retrospectively, my symptoms went back to my 30's, but was not diagnosed until about 10 years later. There is a young onset PD group on facebook that you might find useful.

[gurdeep11 in reply to Susie01]

please give me link, what meds u r on

[Susie01]

facebook.com/groups/YOPD1/ I started out on Azilect, have tried others (requip, neupro patch, did not work for me). I now take Azilect and Sinemet. Sinemet was added about a year ago when my tremors began to interfere with daily activities again.

[gurdeep11 in reply to Susie01]

Do you have any limitations at all, do the meds take away rigidity

[gurdeep11 in reply to gurdeep11]

i read your profile, i too got same predicament, need to support myself and mom, at loss how, did you find any clue, i m 37

[joe45 in reply to Susie01]

Hi susie01,

I noticed u tried the neupropatch at what mg did you get to and why didn't they work for u cause I'm slowly tapering off neupropatch and it's horrible I just want it to be gone ..

[Susie01 in reply to joe45]

Hi Joe,

I also take Azilect, when I started the patch, my blood pressure went up. I could not tell any significant changes in tremor after starting the patch, so did not see a reason to continue it. I try not to take any more meds than I have to. My md wanted to hold off on Sinemet, but we did add it last summer, which has made a big difference in the tremor.

[joe45 in reply to Susie01]

Hi susie01,

Oh right so it didn't show much improvement , not a bad thing there a pain sticking on everyday gets on my nerves can't wait till their gone and out of my system ! That's good you are doing ok on sinemet ...

[Susie01]

Like many early onset, I am tremor dominant. I was a gymnast growing up and still did a lot of flexibility work. Over the last month I have started having a lot more stiffness. I have doubled my stretching to morning and evening. It is a continuous process, I don't know if it will work but am doing what I can to try and prevent it from getting worse. Sometimes it is difficult to distinguish how much is PD and how much is just getting older!