I developed rapid eye movement sleep behaviour disorder 5 years ago as the first stage of PD. Has anyone reversed this condition?

[Bitsy]

[quirkyme]

my husband has sleep apnea, is that what you mean? He's supposed to use a CPAP but now

just sleeps on his side and doesn't have his obstruct and stop breathing. He had it years before he was diagnosed (also constipation from childhood and other symptoms).

[Bitsy]

No that is a different condition that doesn't lead to Parkinson's disease as far as I am aware. It can be distressing to wear a CPAP but I would encourage your husband to wear it, you get used to it - my mother did.

Rapid eye movement sleep behaviour disorder is when you lose your body paralysis (known as muscle atonia) during sleep and so act out your dreams. Cheers

[partypants]

Hey Bitsy - just came across your thread and thought you might be interested in the latest research linking sleep disorders and PD. No indication of anyone reversing it though, rather it seems that it's a precursor to getting PD.

I started a thread yesterday on this - healthunlocked.com/parkinso...

[Bitsy]

Hello party pants, thank you for the link. Yes, I am aware of the implications which are simultaneously interesting and depressing. Most people I think are looking for that window of hope. Not everyone gets RBD and I don't know if that means we who do fare worse or not. I have realised Parkinson's disease is about challenge. It will always be with me but I have to out pace it and the minute I stop doing that, it will out pace me! Cheers

[Bitsy]

Thanks Osidge I was taking 1mg of clonezepam initially but reached tolerance level after 12 months and so discontinued it because it also caused depression for me. I then tried 5 mg of melatonin which gave me nightmares and made me sleep walk which have stopped since I discontinued it. Presently I am on nothing but making sure I am getting all my vitamins naturally (i.e. diet) especially B, C and D vitamins, folate, glutathione and K2 as well as resistance exercise and my symptoms have notably improved. I also balance my omega 3 and 6's with a Paleo diet, cut out gluten and sugar. You might like to read the article I posted recently on the importance of folate for treating Parkinson's. Cheers