I'm asking on behalf of my mother - is it neccesary for her to first drink Carbilev for PD before going for the DBS operations? Meds no good

[wilmiesmith]

Dr said she must drink Carbilev for a month first before she can go for surgery??? But the meds is no good to her...??? Hate to sea her like this -

[wilmiesmith]

Meant "see"...

[srarndt]

Have you sought a 2nd opinion, or done any online research? Is this something your doctor recommends to all or was there something about your mom's situation?

[wilmiesmith]

hallo. No, not that I know of... the one neurologist said she has a essential tremor and then she went for another opinion and this neurologist sais that she as PD - she needs to give her a referral to a neuro-surgeon - but said that she first needs to drink Carbilev for a month, and if this meds even makes her progress of PD better with 40%... then she can go for DBS surgery or treatment. ???? No article that I read about DBS it says that any patient first needs to drink Carbilev before going for the opp....???

[Brooke]

I think the Dr. wants her to take the meds to see if they help her. I believe that in order to be a candidate for DBS the carbo/levo should work for you. Plus if it does he would know for sure that she has PD. I had DBS 5 months ago. Hope this somewhat answers your question.

[wilmiesmith]

thank you so much. sad though that she has to suffer from the meds first for the Dr to see if she has PD... think there is a much saver and healthier way to test this... but thanks for the reply xx

[wilmiesmith]

@ Brooke: How are you doing after the DBS??? and did you have to drink the meds first??

[jonroberts]

There is a detailed criteria for. DBS surgery. I believe one needs to have about 5 years of. PD history. As far as I know, it's a favorable on time with your PD Meds and not specific to carbidopa/levodopa. This is the first I've heard about Meds in liquid form. All of mine are pills and capsules.

[margie]

I have been told that DBS is a last resort when the medicines are not working the way you and your doctor would hope they would, and this is after so many years of being on PD medication. I think you should see a neurologist that is a movement specialist. Going straight to DBS after being told that you have PD after a month> I have never ever heard of it. Please see a movement specialist.

[wilmiesmith in reply to margie]

She had PD for 5 years now, not a month and she went to a neurologist ( 2 of them).. The meds making her weak and has such a bad side- effect on her. Some people believe in meds ... WE and I don't.. We pray GOD will heal her!!! And opens doors...