Does anyone find they are especially both... - Cure Parkinson's

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Does anyone find they are especially bothered by the heat? I used to tolerate it better.

shall1019 profile image
21 Replies
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shall1019 profile image
shall1019
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21 Replies
wifeofparky profile image
wifeofparky

I don't know if that is a PD symptom or just aging. I don't have PD and have trouble on hot days. My husband who did have PD, would dehydrate quickly and that caused him a lot of issues in the heat.

isis6361 profile image
isis6361

The hypothalamus is affected by Parkinson's the hypothalamus is the body temperature control . It deregulates the body temp control is then affected. Deregulation

landman profile image
landman in reply toisis6361

Had to get the dictionary out, but worth it. Thank you.

Kat00 profile image
Kat00

Wife of Parky you are right about dehydration. It is a particular problem for PWPs. It can make you dizzy,weak and out of balance. Hot weather makes it even more important to drink lots of water throughout the day.

beauxreflets profile image
beauxreflets

Sunshine ups the Vitamin D levels and this may have effect to cause overdose symptoms if you are on levadopa medicines. When I was on them full time I used to reduce the dosage in the summer to achieve the right balance.

landman profile image
landman in reply tobeauxreflets

good to know, thank you.

PatV profile image
PatV in reply tobeauxreflets

very good to know. I'm either frozen (indoors in the PD motor sense) or rockin' and rolln'.

landman profile image
landman

Are we talking Las Vegas Heat? Today it will be 117.

tlongmire profile image
tlongmire in reply tolandman

AZ is supposed to 115.

landman profile image
landman in reply totlongmire

I like when the wind blows and you feel like your in a confection oven. I enjoy being a desert rat, how about you?

tlongmire profile image
tlongmire in reply tolandman

It's not so bad once you get used to it. Of course, I might feel differently if I had to get out in it everyday (commute) or work in it.

isis6361 profile image
isis6361

Ok in non scientific language it means the thermometer gets stuck so when a non pd gets hot the temperature can record cold and vies versa hence why hypothermia and overheating are a problem. Wearing layers helps in winter and in summer avoid sitting in direct sunlight.

I know that just when I thought I was past all the mid-life fluctuations in body temp, they're back since being on PD meds. They come and go, not as bad as when first diagnosed, but still there. Part of the package, I guess.

etterus profile image
etterus

I lived in Arizona for 30 years. I was living at 5000 ft and tolerated running, bicycling and outdoor work. At times I would be in the lower elevations and adjusted by slowing down and drinking more water. However, since I have regressed with PD I can no longer tolerate the heat. I recently relocated to Oregon and find it easier to bundle up. I haven't experienced the long rainy season yet... I might be complaining about it.

JohnPepper profile image
JohnPepper

Hi shall1019

I suffer in the heat and do not know whenI am cold. I am walking around right now, in mid winter, in shorts and a T-shirt, while everybody else is shivering. If I put my hand on my body, it feels frozen, but I am not aware of it being cold. In the heat, I can be sitting in my study, working away on the computer and my family ask me if I am not hot, and I answer "No!"! But when I try to do anything in the least bit strenuous, I become all sweaty and uncomfortable. Talk about, 'Out of Control!'. I have had, what has been diagnosed as Menniere's Disease for over forty years, almost as long as I have had Pd symptoms. If I let myself become dehydrated, I become very giddy and vomit, for as much as six to eight hours. I only realized over the past two years that it was caused by dehydration. If it happens, when I am driving my car, it causes me lots of problems. Maybe it is not the Menniere's after all! Who knows?

John

tlongmire profile image
tlongmire

I'm just the opposite. I tolerate the heat more now than ever before in my life. Lived in CO all my life until retiring end of 2009. Moved to AZ (really HOT) diagnosed with PD July 2010.

shall1019 profile image
shall1019

Thank you all for your responses. I'm in the SF Bay Area and we don't have air conditioning. We rely on the ocean fog to cool the area, but when it doesn't happen like now - it seems very hot to us.

jonroberts profile image
jonroberts

I tolerate heat better than cold! I live in Southern New Mexico. Before I lived in Las Vegas for over 8 years. I'm ok until 108. I'm going to LV after the 4th for a wedding. Temps around 108 that week. I have a son living in Ff. Mohave, Az. 120 plus! I'm staying inside. Beats the cold. I get rigidity below 40 in the winter!

bulldogmom profile image
bulldogmom

I have a lot of trouble with the heat outdoors. Indoors, I seem to have symptoms that are almost like hot flashes but I am post menopausal. I'm hot when no one else is. Haven't found any relief with this yet.

beauxreflets profile image
beauxreflets

Another very important fact (from my experience) is that to help maintain hydration in warmer weather, the body requires a higher level of Salt.

If I feel I am flagging, a good pinch of salt in a tumbler of water works real wonders.

Adele_D profile image
Adele_D

Yes! And by the cold as well.

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