Do you live alone with PD? .... How?

[MichaelOM]

[Hidden]

I did and it wasn't easy, I had to reach out to friends and supporters. But you know I did ok, and I learnt that I was good company, I was ok in my shoes and it was fine. I did start loads of new hobbies make an effort to get out and see people, oh and found a husband on the internet! something I recommend! not a husband but internet dating! Good luck with everything!

Kindest C

[compucure in reply to Hidden]

Hi C - what new hobbies did you start? Tony x

[Hidden in reply to compucure]

Well I re kindled a love of photography, writing, and cooking. And new radio broadcasting, painting (now selling for charity) and of course the drums!

[JanellenGrimaldi in reply to Hidden]

Reaching out is so important! Thanks for this! And yes being alone is ok. You have to love yourself up! And..keep busy!!! Regards! JEG

[Jerebet]

The answer is having a good support system and knowing your limitations. I live alone but my family and friends are quick to come to my aid if I call and they check on me often. I am still stage one and unilateral. My job allows me to work from home and I can still fend for my self though I am very slow. My cell phone is on me at all times as falls are one of PD sufferers biggest enemies. If and when my symptoms progress to stage three,I might need to have a caregiver.

[JanellenGrimaldi in reply to Jerebet]

Keep up the good work Jerebet! I have a similar situation. I do not intend to fall! I am always aware of my surroundings when out and about!!! (And in and about, too!) I am unilateral-right side as well..Cheers¤JEG

[christinemc]

Helllo, I was already living alone when I was diagnosed ,so the transition from being alone to being alone with PD was not one of choice. I had to leave my job as a cook, due to my dystonia affecting my work, and I also decided to move to a ground floor flat after I had a fall on the stairs. On a bad day I sometimes go back to bed for a nap; but on good days I am out whenever possible. I walk, or take a bus ride, just to be out and see people, and keep my brain moving by taking further education courses. We all find our own ways of coping, take care, Christine

[JanellenGrimaldi in reply to christinemc]

Thank yoou! I do the same. take care Christine!

JEG

[AndyC]

I`m divorced ( I was married for 12 years ) and I now live on my own in a first floor flat (apartment), I was on my own when I was diagnosed in Oct 2011, at moment I only have a tremor in my right hand but both Nuerosurgeon and Nurse says it could remain that way for 10 years or so. I work as a part time driver working with adults with learning disabilities. I am currently awaiting the DVLA ( Driver Licensing Authority in UK ) decision on whether I am still allowed to drive. I enjoy my work and hopefully I will go through some training so I can become full time...fingers crossed. Making ends meet is a struggle each month what with having to pay rent, household bills, debts etc, my landlady has been very helpful in reducing my monthly rent until I get sorted out financially. I get no benefits apart from a minimal amount of housing benefit as even though I am part time I`m still considered to be earning too much money each month to be elligible!! I see my 3 young children every saturday which gives me plenty to look forward to each week. I`m facing life with Parkinsons with a smile on my face I am determined it will not get me down.....I have enough on my plate with my everyday life!! I dont talk much to my family (mother & sister) about it as all I get is negative comments about lack of benefits etc etc! they never give any positive vibes.I have a lady friend who I met on the internet and she is supportive and helps to keep me smiling (we share a similar sense of humour). There are times when I do feel very alone but coming on this great site always cheers me up :-)....plus theres Facebook (if anyone wants to look me up I`m on as Andy Clegg and my profile pic is same as on here) and youtube....and whatever takes my fancy on TV or the radio.....Anyway at the end of the day there are always gonna be people in a much worse (socially & financially) situation than me

Well thats enough of me rambling on

Take care all

Andy xx

[jillannf6]

hi

ihave psp and was diagnosed in dec2010]

i live on my own in an apartment and am divroced after 33 yrs of marriage )( no children and therefore no grandhcildren)

but i am a lot happier now i know the causes of my health problems

and am mvoign in with a man i met (nealyr 4 yrs ago) 2 a ground floor flat in the same buildign i am in now

WHEN the lawyers have done their bit :not end fo jAN but mid feb???

I too hav had 3 falls down the stairs and do nto want anymore - every timeI go down the 25 stairs to let my cat in and out i amSO careful

but iwht hte psp there is no knowing how/ when i will fall a split second b4 i know

and

today i ahv efallen agian abotu 14 times 0 stopped counting

but not very hurt at all apart from the time it takes me ot get up from them

and the frustration of being on the floor again

but i digresss

i hhave managed and shall do so iwth myh carer and my partner 2 different people) to help me

love jill

[PatV]

I'm 10 yrs into diagnosis. Retired 4 years ago due to injuries. Had to hire someone to help me occasionally. I keep busy with Buddhist and neighborhood meetings. Watch way too much TV. My daughters live close by but I don't see them as much as I'd like. I'm weighing moving to a residence. It's overwhelming. My mind is so active. I just realized yesterday how much movement I've lost. Finding another ballroom dance partner is just a dream.

[JanellenGrimaldi]

I do, and I manage well as I am not at an advanced stage. I was diagnosed in 2009, with atremor in my right hand and toe curling thing, going on. I am very active, am a musician, and have a postive outlook. I fell into a major depression soon after diagnosis, because Ii thought I would never be able to play my viola again because of the right-hand tremor. Well, it is true that I will never play as a concert violist again, but I can still play and teach and all the while keep doing the best I can "reinventing the wheel" so to speak, with my bowing arm.Also, try to take good care of myself..practicing patience with myself above all else, and MINDFULNESS, doing one thing at a time, slowing myself down when I feel myself getting anxious and/or impatient with myself. I see a neurologist who has a sub-specialty in MOVEMENT DISORDERS. This I feel, is a key point in treatment. My first neurologist was just a plain old neurologist. Ii feel that you have to keep moving or yoou will surely develop rigidity and thereby become an invalid! I work with a physical therapist and am going to start going to a speech class to ward off the facial masking in speech production. My motto is to keep moving forward>>>>>

[ricia67]

l have been living on my own with Parkinsons for 12 years.L cope very well and have many friends.But l feel very lonely not having a proper relationship.L have meet man over the years but l think because of my Parkinsons only want to be friends. My main love is dancing ,the music helps my Parkinsons a lot,if l hear pop music l can move more on the dance floor then l can in my own home.L have enjoyed reading other people comments .