Looking for positive friends with like problems

[Jmills]

Looking for RA friends. I am pretty new at handlingeverything that going on in my life. So I trying to find friends that will help me learn to get through this in the most positive way I can. Waiting to hear back.

[jewel8888]

Hi there, its best when we have friends so we can support each other. I'll friend request if that's OK.

[Jmills]

Thanks, all of medication do worry me a lot.. I have always tried to see the brighter side.. but this is one time I need help finding that side. I am a my cup is half full person.. not a half empty. But I feel I am loosing that .

[Amy_Lee]

Hi Jmills,

I was diagnosed with RA in Jun 2014 and started the treatment in 23 July 2014. After about 2 years now, I am in remission. The things that I did was to surrender myself to the professional that I believed he knew best of how to handle and advise me.

I never failed to take my medication and I exercise consistently. I read a lot to find out how to help me to recover fast. I hardly eat red meat and I cut off dairy products.

Tell us your worry and your problems, we will see if we can advise you base on our own experience. Yes, we need support from friends who know our problems.

[Jmills in reply to Amy_Lee]

Thanks Amy, I have never been able to eat dairy of any kind.. So L am good there. I eat mostly fruit on veggies.. I drink a lot of water.. But stuff keeps popping up like lately my shins are so painful and I don't know why. And i break out in this bad rash on my hands and it itches like crazy.. I think all this sound crazy. I think my body forgot I love being very active.. My hands stay swollen. I need to stop , I don't like sounding like this.. Thanks for sharing

[Amy_Lee in reply to Jmills]

Hi Jmills,

Not to worry about telling us your suffering. Without knowing what happen to you, we cannot give you any of our experience.

I am not sure about your shins problem but I had the rashes and itchiness problems twice all over my body. In my case, I suspect the omega 3 side effect on me. Please read the link below for better understanding. If you are also on omega 3, I suggest you stop it to see if there is any improvement. Omega 3 is only a supplement that help to reduce inflammation and it is not the key medication to suppress the immune system hence it will not do much harm to us without the knowledge of our doctor. After trying if you feel better then tell your doctor or you check with your doctor first before you stop it.

In my case, I have the following side effects and I got very much better after I stopped the omega 3. You can read the link below to understand more of it.

Irritation, itching, rashes, throat pain, nausea and vomiting.

mayoclinic.org/drugs-supple...

[SherryKayB]

Happy to be friends with you! We all need support.

[Jmills in reply to SherryKayB]

Thanks

[Mamadukes]

I'm also new to all this. Just started methotrexate yesterday. I really had to get mentally prepared and keep telling myself it would all be ok.,and the meds will help. So...no nausea ! I was so afraid of that. I did get a really horrible head ache,but could have been from my nodular scleritis. Good luck with everything, be positive. And it's OK to have a period of time to be sad,mad and depressed after getting this awful diagnosis. Just for a little while though.

[Jmills in reply to Mamadukes]

I totally understand where your at.. HUgs

[Amy_Lee in reply to Mamadukes]

I can understand, dear. However, methotrexate takes 12 to 16 weeks to kick in, therefore just be prepared the worse pain to come during these few months. Thereafter, you will be fine slowly. Just come online to tell us if you need to, we will give you our morale support.

[Jmills]

Thank you so much , I am also new at learning this site.. sorry I am late answering.. Again Thanks

[Deb-h]

Add me too!

[jaclyn11305]

hello sweetie so sad you find your self here but its great support and information. I was diagnosed in may 16 at age 33 its a blow to handle but taking it one day at a time. I find life rather difficult at the moment as went from being very active to hardly able to get out of bed. I can't see a rhumy until August. Im here if you need to talk. We Need to be here for each other as many other's don't understand what we are going through.

[Mamadukes in reply to jaclyn11305]

It's so true about other people not understanding. My sister told me the other day that her sister-in-law has ra,but she doesn't take meds, only does pilates and exercise and she's doing great . I'm thinking Really? I know exercise helps (if you can move enough to do it ) but she doesn't understand that without the meds,your body is destroying itself.

[Amy_Lee in reply to Mamadukes]

I was not able to move if I didn't take med. After a few months of med, then only I could start to swing my hands a little bit for months. I am doing yoga, pilate and foam roller exercise everyday.

May be she is not really having an aggressive RA? Not sure, only she and her doctor know well of her condition.

[jaclyn11305 in reply to Mamadukes]

In my opion i think that is bs maybe she wants people ti think she is not taking meds but really is or she doesn't have ra real bad cause there is no way exersise is going to make you 100% better. It gave me a good laugh though.

[Mamadukes]

I know, really we would all be exercising our buttsoff, if we could, instead of taking thsee meds. It's so frustrating that people have no understanding of this disease 😕