I have a joint hospital team (NHS) who support me in managing my pain and symptoms. (colitis, Dysfunctional bowel).
Unfortunately since covid all my hospital appointments have been cancelled. New letter of yet another appointment to see my specialists arrived today dated May 2022!!!!!☹️
Was supposed to have seen specialsists August this year, have had 5prior appointments cancelled!!!
I feel I have been abandoned and not coping with endless flares and pain. I'm taking all my meds but endless pain is getting tough to cope with.
Another day in bed can't move due to endless bowel spasms. Just wanted to reach out and ask how others are coping through this pandemic.