Why not share your story?

One of the best ways for people with stomas to connect with each other it to share your story - the experience you've been through so far. That's what this blog section is for. There are 13 members in this community so far... let's make it a vibrant place where more people will want to join, ask questions, and provide support!

[Speckiee]

Hi there, ive now had my illiostomy for 4 years now. As a younger patient I dont know anyone who has had similar surgery. My surgery came about as a result of my Chrons spiraling out of control. Medication was no longer keeping it under control, even the steroids had stopped working!!

Not to worry. All is well now and being a bag lady really isn't that bad. xx

[Hidden]

Hi! Thanks for sharing hopefully as this community continues to grow we can find more people who have a similar situation to yours. Either way, welcome!

[retep]

Hi. I've had a Colostomy since I was two days old after being diagnosed with Hirschprungs . I had quite a few problems when young. Surgery and technical know how has come a long way since then. ( Back when Ham was Four pence a loaf ). Appliances have come a long way as well, It would scare people now if they saw what I had to use. It still makes me shudder to think about it now. My Tip. Remember there are people a lot worse off than us.

[Hidden in reply to retep]

That's a great tip. Thank you for that retep, and a warm welcome to the community.

[jansaf in reply to retep]

You are amazing you should write your story there must have been some ups and downs along the way that the rest of us are only just getting used to.

[retep]

Your welcome and thank you

[Tinarjs]

Hi all I was given my colostomy a year ago following a short but rough time and I am thankful to have it. I love my stoma. In fact I am dreading the day that she is returned to the inside. Still that is not yet When I hear about other peoples stories I realise how fortunate I am Thank you everyone and I wish you all good health