Does anyone else on here suffer with HNPP ? .. I am yet to find anyone in England that does ?
HNPP: Does anyone else on here suffer... - Charcot-Marie-Too...
HNPP
Written by
lckydb
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5 Replies
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What is HNPP?
Hereditary neuropathy with liability to pressure palsy ... almost identical to CMT and very very similar to Fibromyalgia & MS
I didn't know that, thanks Ickydb. I looked it up online and there is a whole website on it HNPP.org you probably know that & might find someone over there, unless we call it a different name in the uk
There is a Facebook page called "hnpp help" there are tons of people from England on there. People from all over the world as well! I hope this helps.
I suffer with it too, 1st signs were approx. 33years ago finally diagnosed with it 2 years ago x
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