HNPP

[lckydb]

Does anyone else on here suffer with HNPP ? .. I am yet to find anyone in England that does ?

[spabbygirl]

What is HNPP?

[lckydb in reply to spabbygirl]

Hereditary neuropathy with liability to pressure palsy ... almost identical to CMT and very very similar to Fibromyalgia & MS

[spabbygirl in reply to lckydb]

I didn't know that, thanks Ickydb. I looked it up online and there is a whole website on it HNPP.org you probably know that & might find someone over there, unless we call it a different name in the uk

[Shanetta]

There is a Facebook page called "hnpp help" there are tons of people from England on there. People from all over the world as well! I hope this helps.

[lexy1973]

I suffer with it too, 1st signs were approx. 33years ago finally diagnosed with it 2 years ago x