Ah Well: Suffering from Knee... - Charcot-Marie-Too...

Charcot-Marie-Tooth UK

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Ah Well

Barry52 profile image
7 Replies

Suffering from Knee Hyperextension paig to see ortho surgeon,delivered the news I was dreading-Its the CMT there is no surgical Solution

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Barry52 profile image
Barry52
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7 Replies
John1945 profile image
John1945

Hello to Barry52 >>>>

So sorry to hear of your latest "Private" consultation, with a Consultant Orthopaedic Surgeon !

Once I have "calmed-down", I will certainly respond to you in full :

However, the last time I checked this is 2015, and there is certainly many, and various surgical options that are available to you :

Mind you, I have noticed that over the last 2/3 years, many Doctors are now "hiding-behind", the diagnosis of your Cmt, and Type ? ? ?

"Ah well you see" you have already been diagnosed with Cmt Disease, which is a Neurological Disease, "and as well you know, that there is no current cure for Cmt, so off you go and manage, and accept your current disability" :

By the way, see my secretary on the way out, as they will be happy to collect my professional fee of £ ???.00, thank you so very much, and have a "nice-day" ! ! !

Barry52 profile image
Barry52 in reply toJohn1945

Absolutely 100% spot on,I have done everything I can, I just want to carry on working but the odds are now stacked against me.....surely in 2015 something can be done if a man with no legs can go running around a track in SA then it boils down to one thing MONEY

bev5985 profile image
bev5985 in reply toBarry52

Barry i have had severe problems with CMT but managed to work until my last op 18 months ago when unfortunately i contracvted MRSA and to be honest that floored me more than the CMT ever did

kitbo21 profile image
kitbo21

Me and my girls are all hyper mobile too it's not good.

Barry52 profile image
Barry52 in reply tokitbo21

What if any braces do you use

kitbo21 profile image
kitbo21

Not sure of the name of them? But yes I wear braces I have to.. Is there anyway we can send pictures on this? X

Barry52 profile image
Barry52

I was going to write to Oscar Pistorius and ask to borrow his left leg while he is in prison

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