CMT type 5

[kitbo21]

I have been diagnosed with type 5.. Anyone else??

[bexlp]

I also have type 5

[Megan23]

Hi I'm Mandy from Hull yorkshire I just found out I have cmt a few weeks ago I know it's heredity off my mothers side up to now hope ur well and doing ok xx Mandy

[kitbo21 in reply to Megan23]

Hi Mandy, it's quite overwhelming trying to take it all in but there are so many support groups on Facebook with people like us, I find them very useful and informative xx

[nikkiogi in reply to Megan23]

Hi Megan. My name is NIKKI Ogilvie I also live in Hull and have CMT. I wondered if you would like to friend me on Facebook so we could swap stories ect. Looking forward to hearing from you. NIKKI xx

[nikkiogi]

Where is the follow button please?

[beckyp]

Hi, I also have type 5. I was told only a few people on the planet have type 5! That makes us almost unique. Lucky us... I m from the New Forest, where do you live?

[kitbo21]

Hi yes we are unique haha! I'm in Glasgow, Scotland xxx

[Exhausted101]

I was given a diagnosis of CMT in the '80's which was confirmed in the '90's, but don't know what type. Tested negative for CMT1.

Glasgow's a bit chilly tonight lol

[kitbo21]

I'm having a CMT lunch on Monday in the counting house in city centre, your more than welcome to come.. They'll be about 8 of us there all with CMT also there's a CMT quilt touring the USA which we can sign, it's on its way to me now and hopefully will be here in time for Monday xx

It's at 12 for 12.30 xx