it,s seem to be the number of charcot... - Charcot-Marie-Too...
it,s seem to be the number of charcot marie tooth sufferers are bigger than we thought
Oh yes indeedy! Around 2.6 million worldwide, is a conservative estimate!
Karen
I have always wondered where the figure of one-in-2500 came from. It is always quoted, but if some people with CMT are symptomless, and others undiagnosed, how do we know?
The medical world are clueless,once again I volunteered at my local clinical school,24 doctors saw me the IN STATION 5 'THIS IS WHERE THEY ARE ALLOWED TO ASK QUESTIONS AND EXAMINE number that got the Diagnosis correct
ANSWER-0
Hello to Barry53 ....
I entirely agree with our comments: I have CMT Type 1a, since my birth 68 years ago: At 16 years, (1963), I had successful bone surgery to both my feet, to reduce my "high arches, (pes cavus): However, it took me a full year to recover:
My daughter (44) inherited CMT Type 1a from me: She now has fast approaching "club-feet": She attends a twice yearly "Improve Diagnostic Skills" one day seminar held by, The National Centre for Prosthetics and Orthotics, University of Strathclyde:
A total of 21 Doctors are then divided into groups of three:
They are not given any medical information, or notes: They are then all asked at the end of the day to give their own individual diagnosis: Last year, most incredibly only ONE Doctor diagnosed, (out of 40 circa), it as a Neuromuscular disease, and correctly recommended that she should be referred onwards to consult Neurologist:
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