obinutuzumab : I have started the Obinutuzumab... - CLL Support

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obinutuzumab

Farleytiff profile image
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I have started the Obinutuzumab Ventoclax regime. Had my 4 obinutuzumab infusions so haven’t got to the tablets till next week.

It is a lot of work initially going back and forth to hospital and my anaemia was a pain. But on the plus side I have had painful thumb joints which I put down to arthritis. A constant throbbing in the my arm in the evening and I had a permanent stiff neck so I had to manoeuvre my car to try to look over my shoulder. I visited the doctor and a physio. One said arthritis the other said posture and gave me exercises that didn’t work. My neck is back to working normally. No pain from the thumbs or arm. I am keeping my fingers crossed that other aches I put down to age might disappear.

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Farleytiff profile image
Farleytiff
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Fruitbat13 profile image
Fruitbat13

Good to hear your treatment is going well. I also have arthritis-type pain in my arms etc. My GP didn’t know what it could be so I have been doing physio exercises, which don’t seem to help much 🙄. I am likely to be on V&O treatment in the near future so fingers crossed it will help me too!

Classicaljazz profile image
Classicaljazz

You have completed the most difficult part of the obinutuzumab since now the infusions will be spaced out every four weeks, so that is great! Hopefully your venetoclax ramp up will go smoothly, and then the labwork will not be so frequent and you may have an easier routine to each week. It is much nicer to have these harder parts in the past.

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