For the past 6 weeks I've been unwell with what seem to be the flu. Not knowing that everyday for the past 2 weeks I've had constant nose bleeds and vomiting after food, or randomly through the day. Night times suck as I spend most of it in the bathroom. The coughing won't go away and ive not been able to work throughout this time. Has anyone had the same happen to them?
I'm checking my weight everyday losing about 700grams and my lymph node count is OK considering the cll. Any ideas on what I should do?
Thank you in advance
Written by
FoxAngelus
To view profiles and participate in discussions please or .
I'm not medically trained and not familiar with getting medical attention in Australia, but a reply to a similar posting might suggest what to do: healthunlocked.com/cllsuppo...
-
"With CLL we are all immune compromised and lung / upper respiratory infections are our worst risks since we can get bacterial, viral or fungal pneumonias easily and they can be more dangerous / fatal than our CLL.
-
Many of the symptoms you mention are more common with one of the pneumonias or flu, and his CLL may keep his body from responding appropriately. So your husband and you should be actively insisting on a "differential diagnosis" from the GP en.wikipedia.org/wiki/Diffe...
-
The doctors rarely like digging into these types of infections and some will dismiss them as "Upper Respiratory Infection." As his caregiver, you need to be an assertive advocate to get the doctors to treat these infections as very serious.
In the meantime, if you have to wait for your appointment, keep your fluids sky high (I do green tea, raw honey, and powdered ginger - ginger is a stomach settler - and miso soup when my stomach is way off), get outside and get some sun and fresh air (and open up your house to air it out), and find some extra pillows to elevate your head when sleeping (so if you're congested/nose bleeding, that doesn't flow down your throat, and if you're nauseous, that's less likely to come up).
And rest - a lot. It takes a lot for your immune system to beat an illness, and that's if you don't have CLL.
Please let us know when you have seen your GP and how things go from there. You have been ill for 6 weeks, losing weight and fluids 24 hours around the clock. Here's hoping you get help to stop this loss asap.
I saw the gp today, they are getting in contact with my hematologist in the morning and get back to me. Thank you again for all your replies and will keep you updated
Hello, Many times a primary care doctor and even your CLL specialist will give tests, xrays, etc. But I have found that Levaquin, an anti- bacterial antibiotic helped me seem to survive and thrive and was the best medicine for me to take off and on with CLL. In fact, UCSD gives this medicine out in their clinic because it has been key to our disease. I'm not for taking an antibiotic freely, but with our disease it has been necessary for me because when the CLL flares up it seems to help. It should not be needed frequently. Of course, mention this to your doctors and ask if they agree because some may not think of it. Take care, drink water and try and rest.
Risk/reward wise, Levaquin would be a poor choice of broad spectrum prophylactic antibiotic to prescribe when you have CLL, because there's a FDA black box warning for the fluoroquinine class of drugs of which Levaquin is a member. Per Wikipedia: en.wikipedia.org/wiki/Levof...
Adverse effects are typically mild to moderate. However, severe, disabling, and potentially irreversible adverse effects sometimes occur, and for this reason it is recommended that use of fluoroquinolones be limited.
Prominent among these are adverse effects that became the subject of a black box warning by the FDA in 2016.[12] The FDA wrote: "An FDA safety review has shown that fluoroquinolones when used systemically (i.e. tablets, capsules, and injectable) are associated with disabling and potentially permanent serious adverse effects that can occur together. These adverse effects can involve the tendons, muscles, joints, nerves, and central nervous system."[12] Rarely, tendinitis or tendon rupture may occur due to fluoroquinolone antibiotics, including levofloxacin.[42] Such injuries, including tendon rupture, has been observed up to 6 months after cessation of treatment; higher doses of fluoroquinolones, being elderly, transplant patients, and those with a current or historical corticosteroid use are at elevated risk.[43][44]
The full Adverse Effects section is well worth a read.
ok. I’m sorry to advise because I realize it’s dangerous. For me, it has helped me so much and at the University of California San Diego. But you need to be convinced and familiar with what you put in your own body. I hope you find something you trust.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Was Exposed Two Days Ago
CLL Diagnosed by fluke
Recently diagnosed with CLL
Newly diagnosed with CLL
My mom 78 years old diagnosed with CLL.
