when Ibrutinib does not respond

[Green202]

Hi,

does any person have experience when Ibrutinib does not respond?

[lankisterguy Volunteer]

Hi Green202,

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I'm unclear what you are asking. From your 13 previous posts, it appears you (or your friend) have been taking Ibrutinib for over one year, and have had some challenging side effects. Correct?

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We had a long detailed discussion that one or more replies may help you. Please start with this one: healthunlocked.com/cllsuppo...

and the entire thread: healthunlocked.com/cllsuppo...

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You may also find some other member stories by looking for the box on this page labeled

Related Posts

*What causes bone pain when taking ibrutinib? healthunlocked.com/cllsuppo...

*Question on when to take Ibrutinib healthunlocked.com/cllsuppo...

*Follow ups when on Ibrutinib healthunlocked.com/cllsuppo...

*After you stop with ibrutinib - does Sll-CLL come back? healthunlocked.com/cllsuppo...

*How long does is take for ibrutinib to leave your system? healthunlocked.com/cllsuppo...

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And if one of those links lead to a useful discussion, look for that Related Posts box on the new page, as the contents change according to the title of each post.

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Len

[P444ete]

I didn’t respond for 5 months. My Doctor was going to try alternatives but after finding a paper on the subject and getting a second opinion he was told that @patience” was the key. Not long after I started to respond albeit slowly and have continued to do so. I’m a slow burner according to the doctors and theirs lots like me

[Green202 in reply to P444ete]

Hello,

Can you explain more what @patience means. I apologize for not understanding. I write from Sweden and some words I can not understand in English. Grateful if you explain more.

[P444ete in reply to Green202]

By patience I mean being prepared to wait for the Ibrutinib to work as it sometimes takes longer to work on some people