Practicing with the Patient Voice: A Patient Decision Library: Wow! 4 patient stories/ Drs. Anthony Mato + Dr. Matt Davids comment

[bkoffman]

Practicing with the Patient Voice: A Patient Decision Library: Wow! There is only one thing more informative and helpful than hearing 4 CLL patients describe the treatment decisions they faced and that is the addition of 2 outstanding young CLL experts (Drs. Anthony Mato and Matthew Davids) in their on-camera discussion of the challenges each step of the way for these 4 patients. The CLL Society is pleased to have partnered with Platform Q on their Cancer Coach Live virtual case library – 4 patient stories. Check it out! cllsociety.org/2020/10/canc...

[Eucalyptus22]

Thank you for sharing this. As I start Acalabrutinib on Monday it was wonderful to listen to Sandi. I love her positivity and it has lifted my spirits no end. Roll on Monday.

[bkoffman CLL CURE Hero in reply to Eucalyptus22]

Thank you for that feedback, Eucalyptus 22. I agree Sandi was uplifting and presented beautifully. All the best with Acala! Patty/ CLL Society

[Sushibruno]

I didn't get anything but a blank page🤔

[bkoffman CLL CURE Hero in reply to Sushibruno]

Hello, Sushibruno! Thank you for your note. The patient stories with doctor commentaries are very revealing of decision-making processes, both for the patients and for the physicians. See if you can access them here: cllsociety.org/2020/10/canc...

Stay strong. We are all in this together. Patty/ CALL Society

[Sushibruno in reply to bkoffman]

Thank you very much Patty.. when u say revealing does that mean it's not for everyone to watch?

[bkoffman CLL CURE Hero in reply to Sushibruno]

Hi, Sushibruno. These videos would be beneficial for many CLL patients to view. The amazing thing that is revealed in these interviews is the "inside look" at how both patients and their health care providers process their internal dialogue when considering treatment options. We know that both are carefully weighing the best information they have at hand, but we rarely hear them articulate their thought processes, as they do in these videos when they are zeroing in on the best treatment option. Hope this is helpful. All the best, Patty

[Sushibruno in reply to bkoffman]

Thanks Patty

[Sushibruno in reply to bkoffman]

Sorry if I misinterpreted.

[bkoffman CLL CURE Hero in reply to Sushibruno]

Oh, no worries Be well, Patty

[Sushibruno in reply to bkoffman]

Patty maybe it's my phone but I still couldn't get into that link. 😔