Poly myalgia rheumatica.

[tracey_123]

Do you have any patients suffering with PMR (Polymyalgiarheumatica) on your website.

[Jm954 Administrator]

Tracey, do you mean CLL plus polymyalgia rheumatica? This group is for CLL and a few patients may have both but if you just want to talk about PMR then there is a PMR Group.

Here's the link: healthunlocked.com/pmrgcauk

Best wishes

Jackie

[GLB55]

Hi Tracey, I had PMR from 2009-2011. Treatment usually consists of a small dose of prednisone. Started out on 10mg, then 5, then 2.5. Prednisone made the difference, it was magic. PMR is an autoimmune disease that usually will run its course in 2 or 3 years. My Mom also went through it. We both now have no symptoms and our SED rates have returned to normal. I’ve had no issue with PMR since 2011

[tracey_123]

Thank you for your reply. I have had PMR for 4 years now, have been on Prednisone that long, though down to 5 mgs and gradually coming down slowly slowly. I have glaucoma caused from the Pred. it is a necessary medication but can do a lot of harm to body.

My SED rates are quite low now, so fingers crossed I maybe able to stop taking Pred. though Dr. said may have to stay on it for rest of life, we will see.

Happy to hear you and your Mum have no symptoms, I wish you both the very best.

Tracey

[tracey_123]

Thank you for your reply, sounds very interesting re Parathyroid will certainly look into it.

Tracey

[janet61]

Hi Tracey, I have CLL (since 2002), had Richter's, have squamous cell carcinoma, Degenerative disc disease, Ankylosing spondylopathy, psoriatic arthritis, and just found out I have PMR