CLL and CAD

[somarybur]

I need assistance on how to manage my CLL and my CAD. It seems like my CAD is aggravating my CLL and really don't have a lot of information in managing it well. I belong to some other group related to CAD but none really that supports both. I thank you for your input. To think I live in So Cal I guess it does not really help me ( as far as weather is concerned) with my condition. I was treated last year with Rituxin but only lasted me 8 months.

[cllady01 Former Volunteer]

Are you speaking of Coronary Artery Disease or Cold Agglutintin Disease?

[somarybur in reply to cllady01]

Cold Agglutin Disease, CAgD

[Jm954 Administrator]

Hi somarybur,

just so that there is no confusion, what is CAD?

It might help you to get some responses if you 'lock' your post so that it's only visible in this community. You can do that by going to the little v tab to the right of the 'like' and 'follow' buttons at the bottom of your post.

best wishes

[cllady01 Former Volunteer]

If you have CLL, you must have a Dr. who is monitoring your blood levels. I don't know where in the world you are, but where I live, I can call my CLL Specialist or my Primary Care Dr. when i have such questions as you have.

Even if you are on watch and wait and your next appointment is some time away, when you have difficulty and do not understand what to do, your best persons to go to is your medical team.

There is information online in regard to Cold Agglutinin Disease and CLL.

(I hope these help you move on with your problem and you find relief)

Here are the sites/studies I have found:

A Concise Review of Autoimmune Cytopenias in Chronic ...

ncbi.nlm.nih.gov/pmc/articl...

Feb 1, 2018 ... Although novel oral therapies such as ibrutinib, idelalisib and venetoclax have been shown to be extremely effective in the management of CLL; .... to treat them should be reserved for patients who have transfusion-dependent symptomatic anemia or symptoms secondary to cold agglutinin disease.

Cold Agglutinin Disease Treatment & Management: Approach ...

emedicine.medscape.com/article/135327-treatment‎

Apr 21, 2017 ... The treatment of cold agglutinin disease depends on the gravity of the clinical manifestations, as determined by the characteristics of the antibody and the presence of associated disease(s). Most patients with cold agglutinin disease can manage their disorder successfully just by wearing appropriate ...