13q deletion.: Could someone please explain in a... - CLL Support

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13q deletion.

meemsdream profile image
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Could someone please explain in a little more detail what 13q deleted as the sole abnormality identified by Fish??? Thank you so much. Maria

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meemsdream
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Newdawn profile image
NewdawnAdministrator

This may help to explain Maria;

cll-nhl.com/2012/07/13q-wha...

Newdawn

Newdawn profile image
NewdawnAdministrator

Parts 2 & 3 can be accessed also by clicking on the left link on his blog.

Certainly sounds the best position to be in! :-)

Newdawn

meemsdream profile image
meemsdream in reply toNewdawn

Thank you Newdawn. I still have so much to learn, but I am getting there.

Maria

sandybeaches profile image
sandybeaches

Hi Maria, I am also a 13q deletion according to my FISH test. It is the most favourable deletion to have, according to all the research I have done, and my hemetologist/oncologist. However, we still have CLL and problems with our immune system. So although many patients with a 13q deletion may not need treatment, or at least not for many years, determined by physical symptoms and watching trends in blood values, you must still guard against bacterial infections, and know that we are still susceptible to secondary cancers. So take precautions as discussed many times here in the postings. I wish you the best.

Sandy

meemsdream profile image
meemsdream in reply tosandybeaches

Thank you Sandy. I am hoping that is the case for both of us! I do realize that we are still at a higher risk but with some prayers and good luck I am hoping for the best. Your post helped a lot.

Maria

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