Tingling and 'experience of limbs 'fizzing'

[perfecteverytime]

Does anyone else have experience of 'fizzing' and tingling in face, legs and

elsewhere?

[MartyR]

Yes I have -- face / shoulders -- rubbing makes it go away -- strange!

M

[AussieNeil Partner Administrator]

Have you had any treatment and if so what and when? How long have you had the tingling and limbs fizzing symptoms?

[perfecteverytime in reply to AussieNeil]

I am writing on behalf of my brother who was diagnosed 2+years ago. No treatment so far. He does not know (and neither does GP) if these symptoms are connected to CLL or not..

Frustration lies, in part, from not having a consultant with whom one can have a discussion.

The tingling began in face approximately a year ago and now is much worse and is now down to legs, buttocks, feet.

[AussieNeil Partner Administrator in reply to perfecteverytime]

Given it's not a side effect from treatment, then perhaps the only way it could be related to your brother's CLL is as SandiC suggests - nodes pressing on nerves, but that doesn't fit with face, legs, buttocks and feet. I suggest your brother go back to his GP and ask for further testing. If it is at all CLL related prior to treatment, I'd say it would be very rare...

Neil

[perfecteverytime in reply to AussieNeil]

I am so grateful for this supportive correspondence.

Thank you for your time and kindness

Lois

[SandiC]

I have had meralgia parasthetica for about two months. Tingling, bugs crawling sensation and itching especially at night in my thigh on the outer part. I attribute mine to lymph nodes in the groin pressing on a nerve but who knows. This meralgia parasthetica is really a thing!

[ygtgo]

Hi loisandgavin

I have Peripheral Neuropathy. I have tingling in my feet and shins, on rare occasions in my face and hands.

I was diagnosed with CLL stage 0 aged 47 in 2006, and have not as yet needed treatment.

ygtgo

[allyh1968]

I have struggled with MP for a while now and my GP has told me that it is quite rare and occurs when the nerves get trapped by your hip causing pain and/or numbness in the thigh. Because of my other illnesses he will not prescribe me medication other than a cream with a chilli base called Capsaicin. It does help unless I am stood for a while then the numbness hits again