Help with Drenching Night Sweats!

[BlueSkyTrip]

I am 90 years old. Have been diagnosed with CCL for over 10 years. In last 5 years, experienced drenching night sweats. Now have 3 drenching sweats each night and starting to get them during the day. Oncologists don't believe these sweats are tied to my CLL? Has anyone else experienced anything similar? Thanks for any help.

[rlajbsmith]

Sorry you are struggling with the night sweats. My Oncologist thinks they are related. In fact, the night sweats were on my intake form and He says that the night sweats are our bodies trying to heal itself. I've been experiencing them occasionally and he said that if they got worse that he could offer something to help with them. He didn't go into detail. I said they were manageable at this time and I was only getting them a couple of times a week.

[SofiaDeo]

Night sweats are associated with many types of leukemia, not just CLL:

medicalnewstoday.com/articl...

healthline.com/health/cance...

The exact mechanism is unclear. Perhaps share these links (there are others on the internet if you Google "night sweats CLL") with your doctor, since increasing amount & severity is often correlated with disease progression. For example, I got them severely every night during my initial diagnosis period, and when I am coming out of remission. We're talking changing the sheets every other night, and nightclothes every night. Now that I am under treatment & the CLL is controlled, I get them rarely and less severely.

[BlueSkyTrip in reply to SofiaDeo]

SofiaDeo:

Thank you for your response and the material that you provided. I have reviewed the material and it is very helpful and informative. It is also very odd as the material clearly states that for some, there is in fact a direct correlation to CLL and drenching night sweats! I will add these articles to the material I have already provided to my oncologist to see what he says!

I am definitely in a stage where the disease is progressing as my night sweats have gone from a couple a week (maybe 2 years ago) to most recently, where I now have 3 drenching sweats each night and some smaller ones during the day. I have taken Imbruvica and while it has reduced my white blood cell counts, it causing me to be somewhat delirious and so I have had to stop taking that medication. Doctor wants me to consider another medication

(which is also noted in the material you send) but I am apprehensive of the same level of delirium as I had with the Imbruvica. (The Imbruvica did reduce my white blood cell count as hoped for...but unfortunately, turned me into a zombie for the entire day!). I am taking a 30 day break before I decide what to do.

Thanks again for reaching out and providing me with this information! Good luck to you on your recovery.

[BlueSkyTrip]

Thanks for your reply and information.

Good to hear that your oncologist does believe what sweats can be related to the type of CLL/SLL that I have! That would help me at least make sense of the symptoms that I am experiencing. They tell me the treatments we are going through would not be any different if we did conclude the sweats were in fact, tied to my CLL/SLL diagnosis...it would just make me better understand what I'm experiencing and why.

I hope that your sweats continue to be manageable and thanks again for your response!