Updates to this community

[MaddieHU]

We want to let you know that as of next week, Patient Power will no longer be moderating this community. Over the past few years, Patient Power has provided moderation and support on this community to the best of their ability. Unfortunately, this is no longer possible.

Over the next week, HealthUnlocked will be taking over all aspects of the site’s administration and content moderation. You may notice some minor changes, including a name change to "CLL America Support" logo changes, however all other aspects of the community will remain the same and you will be able to continue sharing information and receiving support as you always have done.

We are activity looking for a new partner organisation to come onboard to take over this community so do keep your eyes peeled for any other communications from us regarding updates on this.

As always, don't hesitate to get in contact with us at [e-mail] if you have any questions.

[Jm954]

Maddie,

As an administrator on the CLLSA CLL group I am concerned that this group has had no admins or moderators that are familiar with CLL for some time now. People are posting questions and not getting answers in a timely way or even necessarily the right information.

Can I suggest that this group is closed and people are directed to the CLL Support Association HU Group. I can see that many are also members of the CLLSA group so I do not think the loss of this group will impact on the help and guidance people receive.

However, newly diagnosed patients may not look any further and be left worried and concerned.

Jackie

[MaddieHU HealthUnlocked in reply to Jm954]

Hi Jackie,

Thanks for raising these concerns. We are still looking for a new partner to come on board in this community, but I will make sure to direct members to the CLLSA community for access to safe moderated content.

Thanks,

Maddie