Question about complications - CLL America Support

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Question about complications

pkpayne profile image
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I'm new here. I has diagnosed back a few years ago with mycobacterium avium complex but I see a pulmonologist yearly and have stayed asymptomatic so he's elected not to treat me - just observe. In February of this year I was diagnosed with CLL - chronic lymphocytic leukemia. Again I am asymptomatic and am in the watch and wait phase. Last month at a blood draw my pc doctor told me that my cholesterol was too high and he wanted me to try taking 1/2 of a 10 mg pill of Lipitor. I had more blood work done to check the cholesterol on 8-29-16. Today the office called me and asked if I was exercising more (no) and if I was having any muscle pain. I told them that I was noticing that I was having a lot of 'Charlie horse' issues lately and that I get tired easier but I didn't know if that was from the CLL or just old age. Anyway, they wanted me to stop taking the Lipitor. Anybody have any ideas about any of this?

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pkpayne
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tclementi profile image
tclementi

Thanks for writing and we are glad you're here! How did you find us? I will do some research for you until other patients have chimed in with their thoughts! Thanks!

pkpayne profile image
pkpayne

I think I found you through a google search - trying to learn more about CLL. There is so much to take in that it gets so confusing to us beginners.

tclementi profile image
tclementi in reply to pkpayne

Glad to hear you found us that way! It is confusing at first but hopefully our videos are helping you!