Alagille syndrome & papildemia - Children's Liver ...

Children's Liver Disease Foundation

2,034 members710 posts

Alagille syndrome & papildemia

TammyC123 profile image
3 Replies

Hi would any of use now of anyone has alagilles also affected with papildemia? Before xmas ollie was diagnosed through MRI and lumbar puncture tho csnt seem to get pressure down through medicine and noe going in again for repeat MRI and lumbar puncture would just like to get y talking to someone expecting something similar as dr qupte told me it's more comman with my sons condition ??

Written by
TammyC123 profile image
TammyC123
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Lois-Cldf profile image
Lois-CldfPartner

Hi TammyC123, are you signed up with the children's liver disease foundation?

Lois x

TammyC123 profile image
TammyC123 in reply to Lois-Cldf

Yes lois were from Belfast weve meet you before at clinic when dr gupte comes over:) x

Lois-Cldf profile image
Lois-CldfPartner in reply to TammyC123

oh Hi Tammy!!!! xxx

Not what you're looking for?

You may also like...

Alagille syndrome

Hi my son is 7 months old he was digasoned at 4 months through gene testing he's doing great and we...

Alagille Syndrome

My son has been officially diagnosed with Alagille Syndrome he has liver, heart, facial, and eye...

Alagille Syndrome

Any information from others that may have being affected

2.5 year old with Alagille syndrome

Hi. My daughter has this condition and is doing well but was wondering if anyone else who has this...

Billirubin levels in patients with alagille syndrome

Hi everyone, We've been to doctors yesterday, my 8 months old daughter has been diagnosed with...