I am now as an adult having problems with abdominal pain so bad that I ended up in the emergency room. Only for them to give me ultrasound and a cat scan and sent me home with pain meds. Not knowing enough about this disease that strikes 1 in 500,000 people. I know something is seriously wrong but where do I get help?
I’m looking for other Choledocal cyst... - Children's Liver ...
I’m looking for other Choledocal cysts patients like me. I’m 29 and I was diagnosed with the disease as a newborn.
Written by
toni54321
To view profiles and participate in discussions please or .
1 Reply
•
Did they not see anything on the scan? Where is it u are? Am in Scotland and they would run bloods aswell as do scans for my baby for any symptoms that could be related. Sorry you are in so much pain, hope you get someone to help you.
Not what you're looking for?
You may also like...
First post! my 2 year old has hepatitis...not viral?
Hello, our 2 1/2 year old has been poorly on and off for about a year. Just looking for advice!
He...
Just confirmed that my son has Biliary artesia
Hello, my son is 11wks old today. He was admitted hospital due to prolonged jaundice with low body...
PFIC - Type 1
So, can anyone at all help me understand what is actually going on? My 2 year old son has recently...
My first little baby has Biliary atresa and I'm so upset and feel so low.Please can I hear anything positive to make me feel a little better
My first little baby boy has biliary atresa. Born on the 11th November 2013. We was only home for a...
Nutrition for alagille babies ...
Hi everyone, we are still waiting for genetical tests to make right diagnosis for my 5 month old...
PFIC 1
Biliary atresia
My daughter is 6 weeks post kasai, due to biliary atresia, would like to hear positive things as there is so much negative xxxx
