my daughter had Kasai on NY eve - we were hoping that this might be end of suffering but last week doctor spelled it out that transplant is inevitable now. The window is between July to December this year. Formal assessment kicks off next week - we are told its a bit of complex case as she is underweight (only 5 kgs) & they will need to use tube/IVF to beef her up soon. A bit scary but has to be done we are told....
I do have a question for others - we have the option to do this in Singapore or we can fly to Kobe in Japan. Fortunately we blessed that we can fund this but anyone with any informed view on Japan vs Singapore ? - we have met several parents and its a mixed bag of feedback.
Any views ?
Written by
Sandiesingh
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