Chronic rejection

Hi, new to this group. My daughter is almost 13, 6 years post transplant and now deemed as being in chronic rejection. There's talk that if blood results continue to rise, particularly billurubin levels they may consider retransplantation.

Has anyone had their child go through chronic rejection and things rectified itself without the need for another transplant?

Is there anything I can do that might help improve things?

Does anyone know if hormonal changes and puberty have an impact on everything that's going?

Truth is, I don't know what to do.

4 Replies

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  • Hi, would you like me to put your post on our face book site and see if we gat some answers there as well -Jacquie

  • Yes please, thank you

  • Will do

  • Hi, you can see the post at facebook.com/families.cldf/...

    best wishes - Jacquie

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