Alagilles Syndrome

[Susie-Lou]

Are there any people age approx 22 that can help with how they cope with condition pls.

[rob1990]

Hi Susie,

I'm a wee bit older at 24 however I have Alagilles Syndrome. How can I help?

[Susie-Lou in reply to rob1990]

Just wanted to know if you drink alcohol and if so how much?

[rob1990]

Hi Susie,

Sorry I thought this had sent. I don't drink too much. I will sometimes buy a bit in such as some wine but it takes me quite a while to get through it.

Rob

[Susie-Lou]

Hi Rob

Thank you. I have a 22 year old son he drinks 2pints of beer a month not sure whether this is what is the usual for people of his age with Alagilles Syndrome. It is unrealistic to expect no alcohol but it is striking a healthy balance. Do you keep well or do you suffer from any symptoms?

Susie

[Susie-Lou in reply to Susie-Lou]

PS

Do you know what they recommended on the drinking situation. Do you go to Kings?