Rosacea : At hospital today and was basically... - Changing Faces

Changing Faces
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Rosacea

Emsky
Emsky
18 Replies

At hospital today and was basically told I'm stuck like this forever this is the whole reason why I went to the dermatologist in the first place, so distraught I hate looking like this, I can't do anything spontaneous and the thought of anyone seeing my face gives me a panic attack, if I'm just at home and not wearing any I won't look in the mirror the only time I do is when I'm covering it up, just wish i didn't have to spend so much time and money on my face, like I literally won't even answer the door or go to the bin without it being covered

18 Replies
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younique
youniqueCommunity Ambassador

Hello Emsky 🤗 It sounds very upsetting to have your life limited by your condition. Did the hospital visit cause you to feel more anxious than usual? Kudos to you for having the courage to seek treatment! That's a huge step. Can you get a second or third opinion?

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Emsky
Emsky
in reply to younique

I don't really know where I can get another opinion as I asked to be referred to dermatologist and this is the one I've been assigned, I don't really think I could ask about changing since its NHS? Also I know there isn't a lot they can do but just last time I went I was so hopeful with all the things he said, then said my acne doesn't look bad... No I never went there about acne I went about rosacea would rather have a few spots than a red face 😭

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EllieChangingFaces
EllieChangingFacesAdministrator
in reply to Emsky

Hi Emsky,

It can feel really crushing to feel hopeful and then not get the outcome you wanted.

If you did want a second opinion but weren't sure where to start, then it might be worth speaking to PALS, which is the NHS's patient advice and liaison service. They should be able to talk through options with you - you can find out more here nhs.uk/common-health-questi...

Hope you have a lovely weekend.

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Emsky

The link isn't working for me :(

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DolaChangingFacesUK
DolaChangingFacesUKAdministrator
in reply to Emsky

Hi Emsky, try again with this nhs.uk/common-health-questi...

If it doesn't take you directly to the page, try copying and pasting the link into your browser.

Best wishes,

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winterday

Wow, I hear you, I’m going through the same thing. I won’t answer the door or even take out the garbage either! I’ve also covered most of my mirrors. I say most because I have two daughters who need a few mirrors.

Although my facial difference isn’t rosacea it is permanent and I’ve had it all my life. And unless I won the lottery I cant get any surgical help to even improve it a little.

I wish I could offer you some brilliant suggestion that would help but unfortunately all I can say is I’m with you and hang in there.

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Emsky
Emsky
in reply to winterday

Thanks! Yeah I've been told there's no cure but joined a support group on Facebook as I thought I had tried everything but with all the suggestions on there which have helped people I still have so much to try so hoping I find something, I hope you find something too!

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Rees_Headley

Have you tried looking at skin camouflage? I’ve heard good reports about how it covers Rosacea and gives people more confidence

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Emsky
Emsky
in reply to Rees_Headley

I already wear make up, which covers it up, but I don't want to go the rest of my life covering it, I want to be able to go out without it being covered and feel comfortable enough to do so

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Gogo_go

Hey, I have been there and I’m so sorry to hear you did not get good news at the doctor. For a year I barely left my house without make up and sunglasses. I still wear make up always. If you ever need to talk to someone please reach out, it helps to have someone to talk to that knows what it’s like.

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Emsky
Emsky
in reply to Gogo_go

Yeah I've had it as a baby then again when I was about 10/11 and I'm now 24 and still have it, it's never went away 😭

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Elvisk16

How is your rosacea now ?

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Emsky
Emsky
in reply to Elvisk16

Still the same, started using azeliac acid so now my skin feels tight, my nose and cheeks are always scarlet or pink at rhe very least :(

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Elvisk16

It totally sucks doesn't it .... I just can't imagine having this for life it is so depressing

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Emsky
Emsky
in reply to Elvisk16

I had it as a baby then it cleared for a bit then came back when I was 10/11 and its never been gone since, I always thought it was my acne causing my inflamed skin, but most of my acne is gone and still left with redness to which I found out is rosacea 😭

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Cosmicgirl

Hi. I feel you. Rosacea sucks and it impacts your life so much. If its any consolation I'm in the same boat. Mine has got so bad recently and it seems to be on my right cheek a lot more than my left, so now I have to walk around with one pink patch on my face on one side, and just to pour salt in the wound I also have the lovely pimples that come with it. Ive basically turned into a recluse. How is yours doing now, is the azaleic acid working. Where are you from BTW. I'm from England so luckily don't have to worry to much about sun!!

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Emsky
Emsky
in reply to Cosmicgirl

Well I'm in Scotland so I can worry even less about the sun, but I've been on holiday and it's just looked the same, the azeliac acid has helped get rid of most of my bumps, but still a walking beetroot, not been outside without my face covered for nearly 10 years now I hate how it looks so much 😭 the azeliac acid has also given me really dry skin for the first time in my life, I had rosacea as a baby as well then it went away for a years and came back when I was about 10/11 and never went away since always thought when my acne went away the red skin would and it never did

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Cosmicgirl
Cosmicgirl
in reply to Emsky

Ha that's true!! I can totally relate, it destroys your self esteem completely. I couldn't use azaleic acid as it burnt my skin. My derm has me on soolantra so we'll wait and see. Are you under a specialist? Dry skin is the worst. I also have this and finding products for it is so hard work. Oh gosh I didn't know you could get it so young. Joining this forum helps as I've realised despite feeling alone I'm not and it's nice to talk to other rosacea suffers 😀

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