hi im adette and i was diagnose with Thoracic Spinal Cord Cavcernoma
Spinal Cord Cavernoma: hi im adette and... - Cavernoma Allianc...
Spinal Cord Cavernoma
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adettee
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Hi Adette, please have a look at the CAUK website, cavernoma.org.uk/about-cave..., where we have information on spinal cord cavernoma.
CAUK offers free membership to everyone affected by cavernoma and we have extensive support that we can provide you with. If you would like to join please go to, cavernoma.org.uk/sign-up/
We have members with spinal cord cavernoma whom we can put you in touch with should you wish and have a secret Facebook group where you will find others in a similar situation.
Every CAUK member receives a free information pack once they have joined.
If you have any more questions please contact me on community@cavernoma.org.uk.
Best wishes,
Angie
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