Hi everyone! I consider myself very lucky for finding out about this community as I felt so alone for almost 5 months now ever since I was diagnosed with cavernoma. Symptoms started a few years ago when after being so stressed due to one of my relative's death, I experienced extreme vertigo and was needed to be hospitalized for a few days. At that time, I did not manifest any neurological symptoms, so I was discharged once the dizziness was gone. But last year, there was this time when I did not feel the ground on my feet while I was walking, and suddenly had severe vertigo again. My anti-dizziness medications were no longer able to control my dizziness and that started my fear. Just 5 months ago, while at work, I started to feel numbness at the tip of my tongue, which eventually progressed to the whole left side of my tongue and throughout the left side of my buccal area. On the way home, I experienced severe vertigo, and I had several bouts of vomiting, which caused be to be admitted again. On MRI, it was found out that I indeed have cavernoma on my left dorsolateral pontine area. My neurosurgeon advised for me to take a rest first. Now, my family and I contemplate on having it removed for we worry a lot whether it would rebleed again. I just graduated from a university and am just starting my career. I no longer want my future to be limited because of this, and so we're choosing to take an action. Neurosurgery or gamma knife are being offered to me. I am having a dilemma on which one to take. I would gladly take up any suggestion from someone who has almost the same, if not the same case as mine. What were the options offered to you? Does anybody know whether we are allowed to ride in planes or not? If you did have surgeries, did you experience any rebleeding again? Thank you. God bless all of us.
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