Do you have blood relatives affected ... - Cavernoma Allianc...

Cavernoma Alliance UK

440 members119 posts

Do you have blood relatives affected by a brain Cavernoma?

11 Replies
11 Replies
ianstu profile image
ianstuPartnerCavernoma Alliance UK

no

SandraLP profile image
SandraLP

No. Relative has brain cav's, but not affect as far as we can tell. The spine ones are the sympomatic.

fjgent profile image
fjgent

Hard to say. Father, sisters and brother have suffered from seizures but never had scans to show cause.

sam_k profile image
sam_k

no

Paula80 profile image
Paula80

No

toptotty73 profile image
toptotty73

Yes I have them but have only ever had one fit from them, my daughter has had one which caused a blood clot at 2,5 years and has caused more problems over the years as it keeps bleeding. This has now been removed and caused a stroke she woke up paralised down her left side and is still trying to recover.

cristyn profile image
cristyn

No

COCA profile image
COCA

Yes, my father and my sister. My son has had the genetic testing, but MRI is clear at this time.

beeandpee profile image
beeandpee

yes four children

gwynne profile image
gwynne

no

Funkeygibbon profile image
Funkeygibbon

No

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